There is a paucity of research and guidance on good practice for engaging with people who are Deafblind in policy development and the co-design of services and service systems. Although there are a range of inclusive research methodologies, such as the World Cafe, Deafblind people are yet to be engaged authentically and effectively in these conversations. To address this issue, and as part of a program of research to investigate and test good practice in this field, we analysed data from semi-structured interviews with eight Deafblindness professionals using inductive thematic analysis. Six themes emerged from the interview data. These were: (1) acknowledging the unique Deafblind world view; (2) the interplay of vulnerability and trusting relationships; (3) the importance of specialist knowledge, skills, and cultural sensitivities; (4) power to the people - addressing power imbalances inherent in consultation processes; (5) same but different – the Deafblind experience of being a culturally and linguistically diverse (CALD) community, and; (6) a challenge that must be met – the imperative to involve people who are Deafblind in research and policy development. If people who are Deafblind are to be engaged in research and policy development, there are a number of guiding principles that need to be considered and practical actions to be taken. These principles include employing a culturally sensitive and trusted research team to spend time working with Deafblind people to help prepare and educate them for research and consultation processes. In so doing, people with lived experiences and professionals in the field can build the trust, knowledge and skills needed to enable authentic co-design and co-production of policy and practice.

中文翻译：

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为包容性咨询，研究和政策制定做准备：耳聋领域的见解

对于与聋哑人参与政策制定以及服务和服务系统的协同设计的人来说，缺乏关于良好实践的研究和指导。尽管有多种包容性研究方法，例如World Cafe，但聋盲人尚未真正有效地参与这些对话。为了解决这个问题，作为研究和测试该领域良好实践的研究计划的一部分，我们使用归纳主题分析对来自八位聋盲专业人员的半结构式访谈的数据进行了分析。访谈数据中出现了六个主题。它们是：（1）承认聋哑人的独特世界观；（2）脆弱性与信任关系的相互作用；（3）专业知识，技能和文化敏感性的重要性；（4）赋予人民权力-解决咨询过程中固有的权力失衡；（5）相同但不同–聋哑人经历成为文化和语言多样性（CALD）社区的经历，并且；（6）必须应对的挑战–必须让聋哑人参与研究和政策制定。如果要让聋盲人从事研究和政策制定，则需要考虑许多指导原则并采取实际行动。这些原则包括雇用对文化敏感且值得信赖的研究团队，花时间与聋哑人合作，以帮助他们做好准备并教育他们进行研究和咨询过程。这样一来，具有丰富经验的人员和该领域的专业人士便可以建立信任，