This article draws parallels between the concept of “Black lives matter” and the efforts of caregivers to advocate for the value of the lives of their children who have disabilities. The authors identify three key concepts that undergird their argument: first, the concept of systemic bias as built in to the hierarchical valuing of different disabilities and the role of this bias in the valuing of parents’ voices; second, the ways in which stigmatized identity markers intersect to intensify bias; and third, the authors propose a broad interpretation of the meaning of parent advocacy in which service providers seek to work as co-advocates rather than as professional advisors. The authors review relevant literature on these themes and also draw on their own experiences as women of color who are parents of children with disabilities. They present their exploration of these topics against the backdrop of the convergence of the COVID-19 pandemic and the Black Lives Matter movement, and call on epistemological assumptions and intersectionality to address the question of whether participants’ perspectives on racism should be considered as “truth.”

本文将“黑人的生命很重要”的概念与看护人为倡导残疾儿童的生命价值所做的努力进行了比较。作者确定了支持他们论点的三个关键概念：首先，系统性偏见的概念内置于不同残疾的等级评估中，以及这种偏见在评估父母声音中的作用；第二，被污名化的身份标记交叉以加剧偏见的方式；第三，作者对父母倡导的含义提出了广泛的解释，其中服务提供者寻求作为共同倡导者而不是专业顾问工作。作者回顾了关于这些主题的相关文献，并借鉴了她们作为有色人种女性作为残疾儿童父母的经历。