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Introduction: theorizing and applying the meaningfully anecdotal patient in neurodiversity research
Notes and Records ( IF 0.4 ) Pub Date : 2022-01-26 , DOI: 10.1098/rsnr.2021.0083
Sharrona Pearl 1
Affiliation  

In the introduction to this issue of Notes and Records, I discuss key arguments of each of the essays and draw links between them. This volume is a rendering of both theory and practice in the history and narrative of neurology, facial difference, autism, face blindness and traumatic brain injury. The essays offer deep analytic insights but also a provocation: how do we frame individual cases and lived experience in the literature of neurodiversity? The scholarly essays offered by Stephen Caspar and Jonathan Cole theorize the role of the individual and the anecdotal as valuable both in framing empathy and diagnostic relationships and as a particular and often overlooked form of data. We see the manifestation of these theoretical arguments in Chloe Silverman's article, which draws our attention to the Reading the Mind in the Eyes Test, a widely used instrument in autism research. Accompanying these pieces are two interventions of creative non-fiction: Heather Sellers's essay on discovering her own prosopagnosia, and Jenny Edkins's poem on living with and being face blind. These pieces manifest the theoretical and grounded work of this volume, arguing in powerful ways for the individual story and sharing it here.



中文翻译:

简介:在神经多样性研究中对有意义的轶事患者进行理论化和应用

在本期《笔记与记录》的导言中,我讨论了每篇论文的关键论点,并在它们之间建立了联系。这本书是对神经病学、面部差异、自闭症、面盲和创伤性脑损伤的历史和叙述的理论和实践的呈现。这些文章提供了深刻的分析见解,但也提出了挑衅:我们如何在神经多样性文献中构建个体案例和生活经验?斯蒂芬卡斯帕和乔纳森科尔提供的学术论文将个人和轶事的作用理论化,构建同理心和诊断关系以及作为一种特殊且经常被忽视的数据形式。我们在 Chloe Silverman 的文章中看到了这些理论论点的体现,该文章将我们的注意力吸引到了自闭症研究中广泛使用的“用眼睛读心术”测试。伴随这些作品的是创造性非小说的两个干预:希瑟·塞勒斯关于发现她自己的面容失认症的文章,以及珍妮·埃德金斯关于生活和面对盲人的诗。这些作品体现了本书的理论和基础工作,以有力的方式为个人故事争论并在此分享。

更新日期:2022-01-26
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