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Families’ Access to Early Intervention and Supports for Children With Developmental Disabilities
Journal of Early Intervention ( IF 1.925 ) Pub Date : 2022-04-08 , DOI: 10.1177/10538151221083984
Suzi J. Sapiets 1 , Richard P. Hastings 1, 2 , Catherine Stanford 1 , Vasiliki Totsika 1, 2, 3
Affiliation  

Early intervention (EI) provision is critical for families who have children with developmental disabilities (DD), but existing evidence suggests accessing EI is not always straightforward. The purpose of this study was to provide a comprehensive description of access to various EI supports (e.g., professionals, services, interventions) for families of young children with suspected or diagnosed DD across the United Kingdom and to investigate perceived ease of access to support, unmet need for support, and barriers and facilitators of access to support. Overall, 673 parental caregivers of children aged 0 to 6 years with suspected or diagnosed DD (e.g., developmental delay, intellectual disability, autism) completed our survey anonymously. Across education, health, and social care, services accessed the most were pediatrics (N = 569, 84.5%), speech and language (N = 567, 84.2%), and general medical practice (N = 530, 78.8%). However, only 18.9% (N = 127) accessed packaged interventions. More than three-quarters (N = 508, 75.5%) reported an unmet need for early support, indicating a mismatch between the availability and capacity of services and demand for support. Parents also reported common barriers (e.g., obstructive services and unhelpful professionals) and facilitators (e.g., supportive and competent professionals, enabling parent factors) of access. Implications for policy, practice, and research are discussed.



中文翻译:

家庭获得发育障碍儿童早期干预和支持的机会

早期干预 (EI) 规定对于有发育障碍 (DD) 孩子的家庭至关重要,但现有证据表明,获得 EI 并不总是那么简单。本研究的目的是为全英国疑似或诊断为 DD 的幼儿家庭提供各种 EI 支持(例如,专业人员、服务、干预措施)的全面描述,并调查获得支持的难易程度,未满足的支持需求,以及获得支持的障碍和促进因素。总体而言,673 名 0 至 6 岁疑似或诊断为 DD(例如,发育迟缓、智力残疾、自闭症)儿童的父母照顾者匿名完成了我们的调查。在教育、健康和社会关怀方面,获得最多的服务是儿科(N = 569, 84.5%)、言语和语言 ( N = 567, 84.2%) 和一般医疗实践 ( N = 530, 78.8%)。然而,只有 18.9% ( N = 127) 接受了成套干预措施。超过四分之三 ( N = 508, 75.5%) 的受访者表示早期支持需求未得到满足,这表明服务的可用性和能力与支持需求不匹配。家长还报告了访问的常见障碍(例如,阻碍性服务和无益的专业人员)和促进者(例如,支持性和有能力的专业人员,使父母因素)。讨论了对政策、实践和研究的影响。

更新日期:2022-04-08
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