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Investigating the process of ethical approval in citizen science research: the case of Public Health
Journal of Science Communication Pub Date : 2021-10-11 , DOI: 10.22323/2.20060204
Antonella Ficorilli , Giovanni Maccani , Mara Balestrini , Annibale Biggeri , Bruna De Marchi , Frederique E. M. Froeling , Florence Gignac , Regina Grazuleviciene , Gerard Hoek , Tjaša Kanduč , David Kocman , Valeria Righi , Xavier Basagana

Undertaking citizen science research in Public Health involving human subjects poses significant challenges concerning the traditional process of ethical approval. It requires an extension of the ethics of protection of research subjects in order to include the empowerment of citizens as citizen scientists. This paper investigates these challenges and illustrates the ethical framework and the strategies developed within the CitieS-Health project. It also proposes first recommendations generated from the experiences of five citizen science pilot studies in environmental epidemiology within this project.

中文翻译:

调查公民科学研究中的伦理批准过程:以公共卫生为例

在涉及人类受试者的公共卫生领域进行公民科学研究对传统的伦理批准过程提出了重大挑战。它需要扩展保护研究对象的伦理,以包括赋予公民作为公民科学家的权力。本文调查了这些挑战,并说明了城市健康项目中制定的伦理框架和策略。它还提出了从该项目中环境流行病学的五项公民科学试点研究的经验中产生的第一批建议。
更新日期:2021-10-11
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