当前位置: X-MOL 学术Science, Technology, & Human Values › 论文详情
Our official English website, www.x-mol.net, welcomes your feedback! (Note: you will need to create a separate account there.)
Citizen-Person: The “Me” in the “We” in Danish Precision Medicine
Science, Technology, & Human Values ( IF 3.634 ) Pub Date : 2022-06-30 , DOI: 10.1177/01622439221108535
Mette N. Svendsen 1 , Laura E. Navne 2
Affiliation  

The genome has become a crucial component in precision medicine aimed at tailoring medical treatment to the individual. To the extent that social science studies of genomics have explored questions related to the individual, these studies have focused on how the governance regarding genomes facilitates individuals’ rights, choices, and responsibilities. By contrast, we approach genomic governance by investigating how enactments of the person in precision medicine actualize practices of reciprocity and belonging in a national collective. Based on document analysis and ethnographic fieldwork in Denmark, we show that genomes are treated simultaneously as digital representations of individuals, social resources for a welfare state population, and emblems of public trust. By drawing on classical and contemporary anthropological theories of personhood, we unfold how Danish precision medicine prescribes a moral continuity between person, state, and territory. We argue that Danish precision medicine revitalizes a national politics of belonging and generates socio-spatial orientations through which the “me” of the person shares origin and place with the “we” of the welfare state.



中文翻译:

Citizen-Person:丹麦精准医学中“我们”中的“我”

基因组已成为精准医疗的关键组成部分,旨在为个体量身定制医疗。就基因组学的社会科学研究探索与个人相关的问题而言,这些研究的重点是基因组治理如何促进个人的权利、选择和责任。相比之下,我们通过调查人们在精准医学中的行为如何实现互惠和归属于国家集体的实践来处理基因组治理。基于丹麦的文件分析和人种学实地调查,我们表明基因组同时被视为个人的数字表示、福利国家人口的社会资源和公众信任的象征。通过借鉴古典和当代人类学的人格理论,我们将展示丹麦精准医学如何规定个人、国家和领土之间的道德连续性。我们认为,丹麦精准医学振兴了国家归属政治,并产生了社会空间方向,通过这些方向,人的“我”与福利国家的“我们”共享起源和位置。

更新日期:2022-07-02
down
wechat
bug