ABSTRACT

People with lived experience of psychosis now have more access than ever to share their own stories and learn about others’ via social media and public health campaigns. However, lived experience accounts that deal with race-based bias and inequity, ambivalent attitudes toward the biomedical illness model, or negative or harmful experiences of treatment remain less visible. Such accounts may help many who are experiencing psychosis to locate themselves in the narratives of others and access insights about recovery and navigating treatment which are currently absent. Future efforts to uplift diverse accounts of lived experience should involve people with lived experience as formal collaborators, make room for discussion of the shortcomings of treatment, and prioritize especially marginalized voices and perspectives.

摘要

有过精神病经历的人现在比以往任何时候都有更多机会通过社交媒体和公共卫生运动分享自己的故事并了解他人的故事。然而，处理基于种族的偏见和不平等、对生物医学疾病模型的矛盾态度或消极或有害的治疗经历的生活经验描述仍然不太明显。这样的叙述可能会帮助许多正在经历精神病的人在他人的叙述中找到自己的位置，并获得目前缺乏的关于康复和导航治疗的见解。未来提升对生活经历的不同描述的努力应该让有生活经历的人成为正式的合作者，为讨论治疗的缺点留出空间，并优先考虑特别是边缘化的声音和观点。