Abstract

This article reports on empirical findings from a Canadian study examining the experiences of carers who support a trans or non-binary person with dementia. Using a trans-affirmative, critical disability, anti-ageist, and intersectional approach, these findings fill an important gap in the literature. The narrative interviews with four participants reveal that there are unique features to caring for a trans or non-binary person with dementia, namely, becoming a carer due to marginalized status, performing care tasks linked to gender identity and expression, and managing multiple and specific forms of discrimination. Three of the four carers were themselves trans or non-binary, pointing to pathways into care that are linked to a shared marginalized identity. In addition to the traditional tasks of dementia care, the participants engaged in gender-related tasks such as gendered body care, sustaining the gendered self, and advocacy and future planning linked to gender identity and expression. The carers also had to manage numerous forms of cisgenderist, ageist, and cogniticist discrimination and violence directed at both the trans or non-binary person with dementia and themselves. This discrimination dramatically reduced care options, placing more responsibility on the shoulders of carers. The article ends with practical recommendations.

摘要

本文报告了一项加拿大研究的实证结果，该研究调查了支持跨性别或非二元痴呆症患者的护理人员的经历。使用跨性别肯定、严重残疾、反年龄歧视和交叉方法，这些发现填补了文献中的一个重要空白。对四名参与者的叙述性访谈表明，照顾患有痴呆症的跨性别或非二元性别者具有独特的特征，即由于边缘化地位而成为一名照顾者，执行与性别认同和表达相关的照顾任务，以及管理多个和特定的形式的歧视。四名看护者中的三名本身就是跨性别者或非二元性别者，他们指出了与共同的边缘化身份相关的护理途径。除了痴呆症护理的传统任务外，参与者参与了与性别相关的任务，例如性别化的身体护理、维持性别化的自我，以及与性别认同和表达相关的宣传和未来规划。护理人员还必须处理针对患有痴呆症的跨性别者或非二元性者和他们自己的多种形式的顺性别歧视、年龄歧视和认知主义歧视和暴力。这种歧视大大减少了护理选择，将更多责任放在护理人员的肩上。文章以实用建议结尾。针对跨性别或非二元性痴呆症患者及其自身的认知主义歧视和暴力。这种歧视大大减少了护理选择，将更多责任放在护理人员的肩上。文章以实用建议结尾。针对跨性别或非二元性痴呆症患者及其自身的认知主义歧视和暴力。这种歧视大大减少了护理选择，将更多责任放在护理人员的肩上。文章以实用建议结尾。