Background The inadequate awareness in the general population is a primary concern for the management of various neurosurgical ailments treated with gamma knife radiosurgery (GKRS). Objective Our study aimed to assess the written patient information by focusing on readability, recall, communication, compliance, and patient satisfaction. Methodology The senior author formulated disease-specific patient information booklets. The booklets comprised two segments: general information about GKRS and disease-specific information. The common themes for discussion were "What is your disease?", "What is gamma knife radiosurgery?", "What are the alternatives to gamma knife radiosurgery," "The benefits of gamma knife radiosurgery," "About gamma knife radiosurgery," "Recovering from gamma knife radiosurgery," "Follow up," "What are the risks," and "Contact." The booklet was emailed after the first consultation to 102 patients. Patients' socioeconomic status and comprehensibility were assessed on validated scoring. Post-GKRS, we emailed a custom-made Google feedback survey of 10 leading questions about the role of patient information booklet in educating and decision-making process. We tried to assess if the booklet helped the patient understand the disease and treatment options. Results In total, 94% of patients read it thoroughly and understood it to their satisfaction. They also shared and discussed the information booklet with their family members and relatives (92%). Furthermore, 96% of patients found the disease-specific information informative. For 83% of patients, the information brochure cleared the doubts regarding the GKRS completely. For 66% of patients, their expectations met the reality. In addition, 94% of patients still recommended giving the booklet to the patients. All high, upper- and middle-class responders were happy and content with the patient information booklet. In contrast, 18 (90%) of the lower middle class and 2 (66.7%) of the lower class considered the information useful to the patients. Also, 90% patients found the language of the patient information booklet comprehensible and not too technical to understand. Conclusions An essential component of disease management is to relieve the anxiety and confusion in the patient's mind and help one choose a treatment modality among the available options. A patient-centric booklet helps impart knowledge, clears doubts, and provides an opportunity to discuss options with family members.

中文翻译：

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伽玛刀放射外科患者信息手册的开发、验证和影响。

背景 普通人群意识不足是伽玛刀放射外科 (GKRS) 治疗的各种神经外科疾病管理的首要问题。目的 我们的研究旨在通过关注可读性、回忆、沟通、依从性和患者满意度来评估书面患者信息。方法 资深作者制定了针对特定疾病的患者信息手册。这些小册子包括两部分：关于 GKRS 的一般信息和特定疾病的信息。共同讨论的主题是“您得了什么病？”、“什么是伽玛刀放射外科手术？”、“伽玛刀放射外科手术的替代方法有哪些”、“伽玛刀放射外科手术的好处”、“关于伽玛刀放射外科手术” “ 信息手册完全消除了对 GKRS 的疑虑。对于 66% 的患者，他们的期望符合现实。此外，94%的患者仍建议将小册子送给患者。所有高级、上层和中层响应者都对患者信息手册感到满意和满意。相比之下，18 名 (90%) 中下层人士和 2 名 (66.7%) 下层人士认为这些信息对患者有用。此外，90% 的患者认为患者信息手册的语言易于理解，而且技术性不太好。结论 疾病管理的一个重要组成部分是减轻患者心中的焦虑和困惑，并帮助患者在可用的选项中选择一种治疗方式。以患者为中心的小册子有助于传授知识，消除疑虑，