Purpose of the review 

Patient-reported outcomes are one of the most valuable clinical outcome measures. In palliative care, however, they are often difficult to retrieve. Therefore, proxy-reported outcomes are sometimes used as a surrogate. As there have been concerns about the validity of these by-proxy reports, the authors reviewed the most recent literature for the most recent insights in using proxy-reported outcomes.

Recent findings 

The authors found very little new research on patient versus proxy-reported outcomes in palliative care. The results of the studies the authors found seem to correlate with older evidence concluding that there are many factors influencing a discrepancy between patients’ outcomes and how this is perceived by their proxies, such as the well-being paradox, caregiver burden, and the proxies’ own mental well-being.

Summary 

While proxies’ opinions and knowledge of the patients’ values are important factors to consider, proxy-reported outcomes should be used with caution and viewed as a complementary perspective rather than a true substitute for the individual patient’s outcome.

中文翻译：

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支持性和姑息性治疗中患者报告的结果与代理报告的结果：近期文献摘要

审查的目的 

患者报告的结果是最有价值的临床结果指标之一。然而，在姑息治疗中，它们通常很难找回。因此，代理报告的结果有时被用作替代指标。由于担心这些代理报告的有效性，作者回顾了最近的文献，以了解使用代理报告结果的最新见解。

最近的发现 

作者发现很少有关于姑息治疗中患者与代理报告结果的新研究。作者发现的研究结果似乎与较早的证据相关，这些证据得出的结论是，影响患者结果与其代理人的看法之间存在差异的因素有很多，例如幸福感悖论、看护者负担和代理人'自己的心理健康。

概括 

虽然代理人的意见和对患者价值观的了解是需要考虑的重要因素，但应谨慎使用代理人报告的结果，并将其视为一种补充观点，而不是真正替代个体患者的结果。