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Maternal-fetal surgery as part of pediatric palliative care
Seminars in Fetal and Neonatal Medicine ( IF 3 ) Pub Date : 2023-04-20 , DOI: 10.1016/j.siny.2023.101440
Felix R De Bie 1 , Tyler Tate 2 , Ryan M Antiel 3
Affiliation  

Maternal-fetal surgical interventions have become a more common part of prenatal care. This third option, beside termination or post-natal interventions, complicates prenatal decision-making: while interventions may be lifesaving, survivors may face a life with disability. Pediatric palliative care (PPC) is more than end of life or hospice care, it aims at helping patients with complex medical conditions live well. In this paper, we briefly discuss maternal-fetal surgery, challenges regarding counseling and benefit-risk evaluation, argue that PPC should be a routine part of prenatal consultation, discuss the pivotal role of the maternal-fetal surgeon in the PCC-team, and finally discuss some of the ethical considerations of maternal-fetal surgery. We illustrate this with a case example of an infant diagnosed with congenital diaphragmatic hernia (CDH).



中文翻译:

母胎手术作为儿科姑息治疗的一部分

母胎手术干预已成为产前护理中更常见的部分。除了终止或产后干预之外,这第三种选择使产前决策复杂化:虽然干预可能挽救生命,但幸存者可能面临残疾。儿科姑息治疗(PPC) 不仅仅是临终关怀或临终关怀,它旨在帮助患者患有复杂疾病的人生活得很好。在本文中,我们简要讨论了母胎手术、咨询和利益风险评估方面的挑战,认为 PPC 应该成为产前咨询的常规部分,讨论了母胎外科医生在 PCC 团队中的关键作用,以及最后讨论母胎手术的一些伦理考虑。我们以被诊断患有先天性膈疝 (CDH) 的婴儿为例来说明这一点。

更新日期:2023-04-20
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