There is an emerging call for new strengths-based measures to guide research, care, and support for persons living with Alzheimer's disease and related dementias. Person-centered interventions have demonstrated a positive impact in global quality of life, but many promising approaches lack strengths-based measures with sufficient sensitivity to document relevant outcomes. Human centered design is an innovative method for person-centered instrument development. This paper describes a research process using Human Centered Design and highlights ethical principles considered during the translation of the design process to experiential world of Alzheimer's disease and related dementia. Including persons living with dementia and care partners as members of the design team offers new insights, while requiring focused attention on inclusivity, transparency, and person-centered ethics.

人们正在呼吁采取新的基于优势的措施来指导对阿尔茨海默病和相关痴呆症患者的研究、护理和支持。以人为本的干预措施已证明对全球生活质量产生了积极影响，但许多有前途的方法缺乏基于优势的措施，这些措施具有足够的敏感性来记录相关结果。以人为本的设计是以人为本的仪器开发的创新方法。本文描述了使用以人为本的设计的研究过程，并强调了在将设计过程转化为阿尔茨海默病和相关痴呆症的体验世界时考虑的伦理原则。包括痴呆症患者和护理伙伴作为设计团队的成员提供了新的见解，同时需要重点关注包容性，