ABSTRACT

Challenging behaviours significantly impact the lives of people with traumatic brain injury (TBI) and their family caregivers. However, these behaviours are rarely defined from the perspectives of both individuals, a necessary step to developing interventions targeting meaningful goals for individuals and caregivers. This study aimed to (1) explore and confirm the perspective of individuals with TBI living in the community and their family caregivers on behaviours they consider challenging and, (2) identify overlapping or distinct views on challenging behaviours. A qualitative descriptive design was used. Twelve caregivers (8 females; 59.67 ± 11.64 years old) and 14 participants with mild-severe TBI (6 females; 43.21 ± 10.98 years old; time post-injury: 21.71 ± 10.84 years) were interviewed (10 dyads and two triads). Data were analysed using inductive qualitative analysis. Challenging behaviours most frequently reported by all participants were aggressive/impulsive behaviours, inappropriate social behaviours, and behavioural manifestations of cognitive impairments. Overlapping perspectives were identified regarding aggressive behaviours. Distinctions exist as inappropriate social behaviours and cognitive difficulties were mainly reported by caregivers. Our results confirm that perspectives may vary between dyad members. Interventions should include dyad inputs to formulate goals that are significant to the person with TBI and their caregiver.

摘要

挑战性行为严重影响脑外伤 (TBI) 患者及其家庭护理人员的生活。然而，这些行为很少从两个人的角度来定义，这是制定针对个人和护理人员有意义的目标的干预措施的必要步骤。本研究旨在 (1) 探索并确认生活在社区中的 TBI 患者及其家庭照顾者对他们认为具有挑战性的行为的看法，(2) 识别对具有挑战性的行为的重叠或不同观点。使用了定性描述性设计。12 名护理人员（8 名女性；59.67  ±  11.64 岁）和 14 名轻度至重度 TBI 参与者（6 名女性；43.21  ±  10.98 岁；受伤后时间：21.71  ± 10.84 岁）接受了采访（10 个二人组和两个三人组）。使用归纳定性分析对数据进行分析。所有参与者最常报告的挑战性行为是攻击性/冲动行为、不恰当的社交行为和认知障碍的行为表现。关于攻击性行为，人们发现了重叠的观点。存在差异，因为不适当的社会行为和认知困难主要由护理人员报告。我们的结果证实，二人成员之间的观点可能有所不同。干预措施应包括双方的投入，以制定对 TBI 患者及其护理人员具有重要意义的目标。