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Parental distress in childhood acute lymphoblastic leukemia: A systematic review of the literature.
Journal of Family Psychology ( IF 3.302 ) Pub Date : 2023-06-08 , DOI: 10.1037/fam0001113
Ana Ferraz 1 , Martim Santos 1 , M Graça Pereira 1
Affiliation  

The present study is a systematic review of factors and consequences of parental distress following their children's acute lymphoblastic leukemia (ALL) diagnosis. PubMed, Web of Science, and APA PsycInfo databases were searched. Twenty-eight papers were included, with only three longitudinal studies. Fifteen studies explored factors of parental distress, including sociodemographic, psychosocial, psychological, family, health, and ALL-specific variables. Correlations were found between social support, illness cognitions, coping strategies, and parental distress, as well as contradictory results regarding sociodemographic variables. Family cohesion and the overall impact of illness were associated with parental distress. Resilience factors contributed negatively to parental distress symptoms, and perceived caregiver strain and negative child's emotional functioning contributed positively. Thirteen papers explored the consequences of parental distress, including psychological, family, health, and social/education factors. Distress was correlated with care burden and contributed to family strain, child's symptom burden, and parental protective behavior. Significant correlations were found between parental distress, at diagnosis, and further adjustment of parents and children. Most papers reported correlations between parental distress and psychological condition and quality of life; few studies reported no association. Correlations between maternal depression and child's participation in education and social life were found. Differences on distress were found regarding parents' gender, age, children's group risk, and treatment phases. Longitudinal studies are needed to better understand the phenomenon and its consequences. Future interventions should address parents' mental health needs in an early and ongoing assessment in order to promote healthier outcomes. (PsycInfo Database Record (c) 2023 APA, all rights reserved).

中文翻译:

儿童急性淋巴细胞白血病的父母困扰:对文献的系统回顾。

本研究系统回顾了父母在其子女诊断出急性淋巴细胞白血病 (ALL) 后的困扰因素和后果。搜索了 PubMed、Web of Science 和 APA PsycInfo 数据库。包括 28 篇论文,只有三篇纵向研究。十五项研究探讨了父母痛苦的因素,包括社会人口学、社会心理、心理、家庭、健康和 ALL 特定变量。在社会支持、疾病认知、应对策略和父母痛苦之间发现了相关性,以及关于社会人口变量的矛盾结果。家庭凝聚力和疾病的总体影响与父母的痛苦有关。复原力因素对父母的痛苦症状、照顾者的压力和消极的孩子有负面影响。的情绪功能做出了积极贡献。十三篇论文探讨了父母痛苦的后果,包括心理、家庭、健康和社会/教育因素。痛苦与照顾负担相关,并导致家庭紧张、儿童的症状负担和父母的保护行为。在父母的痛苦、诊断以及父母和孩子的进一步调整之间发现了显着的相关性。大多数论文报告了父母痛苦与心理状况和生活质量之间的相关性;很少有研究报告没有关联。发现了母亲抑郁与孩子参与教育和社会生活之间的相关性。在父母的性别、年龄、儿童群体风险和治疗阶段方面发现了痛苦的差异。需要进行纵向研究以更好地了解这一现象及其后果。未来的干预措施应该在早期和持续的评估中解决父母的心理健康需求,以促进更健康的结果。(PsycInfo 数据库记录 (c) 2023 APA,保留所有权利)。
更新日期:2023-06-08
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