Objectives Patient experience is directly related to health outcomes, and parental experience can be used as a proxy for this in neonatal care. This project was designed to assess parental experience of neonatal surgical care to inform future service developments and improve the care we provide. Methods This was a qualitative study using rapid qualitative analysis. The study was carried out in a large neonatal surgical intensive care unit in the UK. Parents of infants treated by the neonatal surgical team between March 2020 and February 2021, during the COVID-19 pandemic were included. Purposive sampling was used to ensure that a representative range of parents were interviewed. A semistructured interview was created and tested in a previous phase of work. This questionnaire was used to ask parents open questions about different aspects of their infants’ healthcare journey from the antenatal phase through to discharge from the neonatal unit (NUU). Results Rapid qualitative analysis was employed, and parental experiences were grouped into five main categories: before admission to the NNU, initial admission to NNU, information and support, COVID-19 and discharge. Within these five groups, we highlighted positive experiences to be fed back to the healthcare teams to reinforce good practice, areas that warranted improvement and suggestions for service development. Conclusions The wealth of data generated from the interviews has been summarized and shared with healthcare teams who are putting the service improvement suggestions into practice. The tool is available for services that wish to measure parental experience. Data are available upon reasonable request.

中文翻译：

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从新生儿手术室的家长经验中学习：定性服务评估

目标 患者的经验与健康结果直接相关，父母的经验可以作为新生儿护理中的代理。该项目旨在评估新生儿手术护理的父母经验，为未来的服务发展提供信息并改善我们提供的护理。方法 这是一项使用快速定性分析的定性研究。该研究是在英国的一个大型新生儿外科重症监护病房进行的。2020 年 3 月至 2021 年 2 月 COVID-19 大流行期间接受新生儿外科团队治疗的婴儿的父母也包括在内。采用有目的的抽样来确保采访了具有代表性的家长。在工作的前一阶段创建并测试了半结构化访谈。该调查问卷用于向家长询问有关婴儿从产前阶段到出院新生儿病房 (NUU) 的医疗保健过程的不同方面的开放性问题。结果 采用快速定性分析，将家长的经历分为五个主要类别：入读 NNU 之前、初次入读 NNU、信息和支持、COVID-19 和出院。在这五个小组中，我们强调了积极的经验，将其反馈给医疗团队，以加强良好实践、需要改进的领域以及服务发展的建议。结论 访谈产生的大量数据已被总结并与正在将服务改进建议付诸实践的医疗团队共享。该工具可用于希望衡量父母体验的服务。数据可根据合理要求提供。