INTRODUCTION Quality of life in childhood cancer survivors is largely affected by survivorship care and transition from treatment to long-term follow-up (LTFU). Referring to evidence-based recommendations, we wanted to evaluate LTFU care for survivors through a survey among the Italian Association for Pediatric Hematology-Oncology (AIEOP) centers. The project aimed to evaluate the availability of services in Italy, investigate strengths and weaknesses, analyze improvements of awareness in the field, and identify the gaps that need to be addressed by different centers. METHODS Together with the family representatives, on behalf of AIEOP's Late Effects Working Group, we developed a questionnaire on assisting childhood cancer survivors. All AIEOP centers received one questionnaire including information on local health system organizations; LTFU for childhood cancer survivors; services for adult survivors of childhood cancer; information provided to survivors/caregivers and care plan delivery. RESULTS Forty-eight AIEOP centers were contacted and 42 replied, with a response rate of 87.5%. The majority of respondents confirmed their interest in assisting patients with a survivorship care plan (95.2%), regardless of a clinic or dedicated staff. DISCUSSION This is the first overview of LTFU in Italy, which provides detailed results at national levels, prompting consideration of improvements in the last decade. Although there is a high level of interest in survivorship care, many centers lack resources to implement such programs. The identification of these challenges is useful for planning future strategies.

中文翻译：

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意大利儿童癌症幸存者后续计划的当前做法。

简介 儿童癌症幸存者的生活质量在很大程度上受到幸存者护理和从治疗到长期随访 (LTFU) 的过渡的影响。根据基于证据的建议，我们希望通过意大利儿科血液肿瘤协会 (AIEOP) 中心的一项调查来评估幸存者的 LTFU 护理。该项目旨在评估意大利服务的可用性，调查优势和劣势，分析该领域意识的提高，并确定不同中心需要解决的差距。方法 我们与家庭代表一起，代表 AIEOP 的晚期影响工作组，制定了一份关于协助儿童癌症幸存者的调查问卷。所有 AIEOP 中心均收到一份调查问卷，其中包括有关当地卫生系统组织的信息；针对儿童癌症幸存者的 LTFU；为儿童癌症成年幸存者提供服务；向幸存者/护理人员提供信息并提供护理计划。结果联系48个AIEOP中心，回复42个，回复率为87.5%。大多数受访者表示有兴趣通过生存护理计划（95.2%）帮助患者，无论诊所或专职工作人员如何。讨论 这是意大利首次对 LTFU 进行概述，提供了国家层面的详细结果，促使人们考虑过去十年的改进。尽管人们对幸存者护理很感兴趣，但许多中心缺乏实施此类计划的资源。