INTRODUCTION The management of childhood type 1 diabetes requires the active participation of parents. The aim of the present study was to describe the main characteristics of parents of children with type 1 diabetes, including objective burden regarding time spent on diabetes care, emotional distress (exhaustion, need for respite, quality of life), and symptoms of depression as well as anxiety. METHODS In this observational study, parents of children with type 1 diabetes completed a questionnaire, anonymously. Different questions were asked to the parent about the objective burden of diabetes and its repercussion, their exhaustion and need for respite. Two validated instruments (HADS, WHOQOL-BREF) have been integrated into the questionnaire. RESULTS Eighty eight parents were included in the study. Among them, 76 (86%) were mothers. All the parents with a child aged 6 years or younger (10/10) reported having to take care of their child's diabetes twice or more a day, this was the case for 37/39 (94.9%) parents of children aged 7 to 13, and for 16/36 (44.4%) of parents of children aged 14 years or above. In the total population, 33/86 (38.4%) parents declared getting up every night because of their child's diabetes. The median daily time spent on diabetes management was 40 minutes. There were 54 parents (62.8%) who reported moderate-strong exhaustion, and 27 (30.7%) who expressed a moderate-strong need for respite. Regarding the result of the HADS, 46 parents (55.4%) reported symptoms of anxiety and/or depression. DISCUSSION/CONCLUSION Parents of children with type 1 diabetes must carry out multiple daily care, at all times of day and night. Their emotional state can be impacted with, in particular, a risk of exhaustion. Screening for these difficulties should be a part of the overall management of a child with type 1 diabetes and his family to limit various complications.

中文翻译：

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1型糖尿病儿童家长的客观负担和情绪困扰。

引言 儿童 1 型糖尿病的管理需要家长的积极参与。本研究的目的是描述 1 型糖尿病儿童父母的主要特征，包括花在糖尿病护理上的时间、情绪困扰（疲惫、需要休息、生活质量）以及抑郁症状等客观负担。以及焦虑。方法 在这项观察性研究中，1 型糖尿病儿童的父母匿名填写了一份调查问卷。我们向家长询问了关于糖尿病的客观负担及其影响、他们的疲惫和喘息的需要等不同的问题。问卷中已纳入两个经过验证的工具（HADS、WHOQOL-BREF）。结果 八十八名家长参与了这项研究。其中，76人（86%）是母亲。所有有 6 岁或以下孩子的父母 (10/10) 表示每天必须照顾孩子的糖尿病两次或以上，其中 37/39 (94.9%) 的 7 至 13 岁孩子的父母就是这种情况，16/36（44.4%）的14岁或以上儿童的家长。在总人口中，33/86 (38.4%) 的父母声称每天晚上起床是因为孩子患有糖尿病。每天花在糖尿病管理上的时间中位数为 40 分钟。有 54 名家长（62.8%）表示中度至重度疲惫，27 名（30.7%）家长表示需要中度至重度休息。根据HADS的结果，46名家长（55.4%）报告有焦虑和/或抑郁症状。讨论/结论 1 型糖尿病儿童的父母必须不分昼夜地进行多次日常护理。他们的情绪状态可能会受到影响，尤其是精疲力尽的风险。对这些困难的筛查应该成为 1 型糖尿病儿童及其家人整体管理的一部分，以限制各种并发症。