ABSTRACT

Obtaining informed consent can be challenging during peer research when the boundaries between researcher and participant are blurred. We developed a novel visual consent method with illiterate artists in Nepal who conducted peer interviews in their communities. Artists discussed and sketched images related to ethical principles to create a visual consent form. This improved comprehension about research ethics and developed the confidence of artists to conduct peer-interviews, but we found that artists memorised the form; they did not engage participants in looking at the pictures with them; and they did not use the pictures that they disagreed with. In future research, the visuals should be developed in consultation with participants and be used to explain the study to participants. The tool development process can be used to establish a joint understanding about the research, its harms, and benefits, and to develop relational and iterative consent processes in participatory action research.

摘要

当研究人员和参与者之间的界限变得模糊时，在同行研究过程中获得知情同意可能具有挑战性。我们与尼泊尔的文盲艺术家一起开发了一种新颖的视觉同意方法，他们在他们的社区进行了同行访谈。艺术家讨论并绘制了与道德原则相关的图像，以创建视觉同意书。这提高了对研究伦理的理解，并增强了艺术家进行同行访谈的信心，但我们发现艺术家记住了形式；他们没有让参与者和他们一起看图片；他们没有使用他们不同意的图片。在未来的研究中，视觉效果应与参与者协商制定，并用于向参与者解释研究。