ABSTRACT

This paper engages with the translation of the abstract concept of Responsible Research and Innovation (RRI) into practice. Our investigation is situated within a large-scale European project seeking to develop a citizen-centered digital health data platform. We specifically engage with co-creation practices and their potential for creating and maintaining inclusive environments generative of critique and empowerment. Critique for us means questioning practices and the modes of thought they rest on, both of ourselves and participants in the co-creation process. We combine a narrative analysis of EU funding calls framing the project with a reflection on our experiences as STS scholars during the co-creation process and on how citizens formulated their critique regarding the health data infrastructure. We end discussing the possibilities and limits of such a co-creation approach and the spaces and modes of critique made possible and, thus, how it lives up to the promises of responsible innovation.

摘要

本文致力于将负责任的研究与创新（RRI）这一抽象概念转化为实践。我们的调查属于一个大型欧洲项目，旨在开发以公民为中心的数字健康数据平台。我们特别致力于共同创造实践及其在创造和维护产生批评和赋权的包容性环境方面的潜力。对我们来说，批评意味着质疑我们自己和共同创造过程的参与者的实践及其所依赖的思维模式。我们将对欧盟资助呼吁框架的叙述性分析与我们作为 STS 学者在共同创建过程中的经验的反思以及公民如何对健康数据基础设施提出批评相结合。