ABSTRACT

Children and adolescents with chronic health conditions are faced with ongoing challenges, making self-regulation crucial. As children grow up, they gradually develop differentiated beliefs about illness and treatment. While research indicates treatment beliefs as relevant factor on outcomes like adherence, the specific contents and dimensions of children’s and adolescents’ treatment beliefs remained unclear. This scoping review therefore aimed at the identification of treatment beliefs dimensions in children and adolescents with chronic health conditions, the underlying theoretical frameworks, and methodological operationalisation. Published literature was examined by applying systematic searches in electronic databases (Medline, PsycINFO, CINAHL) and comprehensive selection criteria, resulting in 49 included studies. The predominant treatment beliefs dimensions were necessity, concerns, perceived benefits and costs/barriers, and expectations. The latter can be differentiated into outcome, social, process, and structural expectations, and expectations of one’s own role in the treatment process. In addition, dimensions that cover emotions and reasons for treatment were identified. The results are related to the methods and theoretical models applied, which were often adapted from adult research. However, additional and possibly more child-specific dimensions such as social expectations and emotions were found. This scoping review indicates several research gaps and discusses practical implications.

摘要

患有慢性疾病的儿童和青少年面临着持续的挑战，因此自我调节至关重要。随着孩子的成长，他们逐渐对疾病和治疗产生不同的信念。虽然研究表明治疗信念是依从性等结果的相关因素，但儿童和青少年治疗信念的具体内容和维度仍不清楚。因此，本次范围审查旨在确定患有慢性疾病的儿童和青少年的治疗信念维度、基本理论框架和方法操作化。通过电子数据库（Medline、PsycINFO、CINAHL）的系统检索和综合选择标准对已发表的文献进行了审查，最终纳入了 49 项研究。主要的治疗信念维度是必要性、担忧、感知的益处和成本/障碍以及期望。后者可以分为结果、社会、过程和结构期望，以及对自己在治疗过程中角色的期望。此外，还确定了涵盖情绪和治疗原因的维度。结果与所应用的方法和理论模型有关，这些方法和理论模型通常改编自成人研究。然而，还发现了额外的、可能更多针对儿童的维度，例如社会期望和情绪。该范围审查指出了一些研究差距并讨论了实际影响。