Aim Spontaneous coronary artery dissection (SCAD) is an under-recognised cause of myocardial infarction. We aimed to investigate SCAD survivors’ perceptions of their quality-of-care and its relationship to quality-of-life. Methods and results An anonymous survey was distributed online to SCAD survivors involved in Australian SCAD support groups, with 172 (95.3% female, mean age 52.6 ± 9.2 years) participants in the study. The survey involved assessment of quality-of-life using a standardised questionnaire (EQ-5DTM-3L). Respondents rated the quality-of-care received during their hospital admission for SCAD a median 8/10 [interquartile range (IQR) 7-10]. Respondents ≤50 years versus >50 years were more likely to perceive that their symptoms were not treated seriously as a myocardial infarction (χ2 = 4.127, df = 1, p < 0.05). Participants rated clinician’s knowledge of SCAD a median 4/10 (IQR 2-8) and 7/10 (IQR 3-9) for Emergency and Cardiology clinicians, respectively (p < 0.05). The internet was the most selected source (45.4%) of useful SCAD information. The mean EQ-5DTM summary index was 0.79 (population norm 0.87). 47.2% of respondents reported a mental health condition diagnosis, with 36% of these diagnosed after their admission with SCAD. Quality-of-life was significantly associated with perceived quality-of-care: EQ-5DTM index/(1-EQ-5DTM index) increased by 13% for each unit increase in quality-of-care after adjusting for age and comorbidities (p < 0.001). Conclusion While SCAD survivors rated their overall hospital care highly, healthcare providers’ knowledge of SCAD was perceived to be poor and, the most common source of SCAD information was the internet. Mental health conditions were common, and a significant association was observed between perceived quality-of-care and SCAD survivors’ quality-of-life.

中文翻译：

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自发性冠状动脉夹层患者对护理质量的看法及其与生活质量的相关性

目的 自发性冠状动脉夹层 (SCAD) 是心肌梗死的一个未被充分认识的原因。我们旨在调查 SCAD 幸存者对其护理质量及其与生活质量的关系的看法。方法和结果 对参与澳大利亚 SCAD 支持小组的 SCAD 幸存者进行了在线匿名调查，共有 172 名参与者（95.3% 为女性，平均年龄 52.6 ± 9.2 岁）。该调查涉及使用标准化问卷（EQ-5DTM-3L）评估生活质量。受访者对因 SCAD 入院期间接受的护理质量的评价中位数为 8/10 [四分位距 (IQR) 7-10]。≤50岁的受访者与>50岁的受访者更有可能认为他们的症状没有作为心肌梗塞得到认真对待(χ2=4.127，df=1，p<0.05)。参与者对急诊科和心脏病科临床医生的 SCAD 知识评价中位数分别为 4/10 (IQR 2-8) 和 7/10 (IQR 3-9) (p < 0.05)。互联网是最常用的有用 SCAD 信息来源 (45.4%)。平均 EQ-5DTM 汇总指数为 0.79（总体常模 0.87）。47.2% 的受访者报告了精神健康状况诊断，其中 36% 的人在入院后诊断出患有 SCAD。生活质量与感知的护理质量显着相关：调整年龄和合并症后，护理质量每增加一个单位，EQ-5DTM 指数/（1-EQ-5DTM 指数）就会增加 13%（ p＜0.001）。结论 虽然 SCAD 幸存者对他们的整体医院护理评价很高，但医疗保健提供者对 SCAD 的了解却很薄弱，而且 SCAD 信息最常见的来源是互联网。心理健康状况很常见，并且观察到护理质量感知与 SCAD 幸存者的生活质量之间存在显着关联。