Introduction

This cross-sectional study aimed to (1) compare family management between families of children with autism spectrum disorder (ASD) or Down syndrome and (2) evaluate the contribution of the child (ASD behaviors, feeding difficulties, sleep disturbances), caregiver (mental health) and family (social support) factors to the caregiver's perceived condition management ability and effort.

Method

Eighty-five caregivers (56 ASD, 29 Down syndrome) completed quantitative instruments online. Data analysis included independent samples t-tests and multiple linear regression.

Results

There were no significant differences in the dimensions of family management between groups. More ASD behaviors were associated with lower condition management ability and higher condition management effort. Lower perceived social support and higher caregiver age were associated with lower condition management ability.

Discussion

Integrating care into family life may be more challenging when the child has more social differences and behavioral rigidity. Nursing care should include an assessment of family social support.

中文翻译：

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自闭症谱系障碍儿童家庭与唐氏综合症儿童家庭的家庭管理比较

 介绍

这项横断面研究旨在 (1) 比较自闭症谱系障碍 (ASD) 或唐氏综合症儿童家庭的家庭管理，以及 (2) 评估儿童（ASD 行为、喂养困难、睡眠障碍）、照顾者（心理健康）和家庭（社会支持）因素会影响护理人员感知的病情管理能力和努力。

 方法

85 名护理人员（56 名自闭症谱系障碍者，29 名唐氏综合症）在线完成了定量工具。数据分析包括独立样本t检验和多元线性回归。

 结果

各组间家庭管理维度无显着差异。更多的 ASD 行为与较低的状况管理能力和较高的状况管理努力相关。较低的社会支持感知和较高的护理人员年龄与较低的病情管理能力相关。

 讨论

当孩子有更多的社会差异和行为僵化时，将照顾融入家庭生活可能会更具挑战性。护理应包括对家庭社会支持的评估。