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Countering ‘the moral science of biopolitics’: Understanding hepatitis C treatment ‘non-compliance’ in the antiviral era
Sociology of Health & Illness ( IF 2.957 ) Pub Date : 2023-09-23 , DOI: 10.1111/1467-9566.13712
David Moore 1 , Suzanne Fraser 1, 2 , Adrian Farrugia 1 , Renae Fomiatti 1, 3 , Michael Edwards 4 , Elizabeth Birbilis 5 , Carla Treloar 1, 2
Affiliation  

Although new hepatitis C treatments are a vast improvement on older, interferon-based regimens, there are those who have not taken up treatment, as well as those who have begun but not completed treatment. In this article, we analyse 50 interviews conducted for an Australian research project on treatment uptake. We draw on Berlant’s (2007, Critical Inquiry, 33) work on ‘slow death’ to analyse so-called ‘non-compliant’ cases, that is, those who begin but do not complete treatment or who do not take antiviral treatment as directed. Approached from a biomedical perspective, such activity does not align with the neoliberal values of progress, self-improvement and rational accumulation that pervade health discourses. However, we argue that it is more illuminating to understand them as cases in which sovereignty and agency are neither simplistically individualised nor denied, and where ‘modes of incoherence, distractedness, and habituation’ are understood to co-exist alongside ‘deliberate and deliberative activity […] in the reproduction of predictable life’ (Berlant, 2007, p. 754). The analysed accounts highlight multiple direct and indirect forces of attrition and powerfully demonstrate the socially produced character of agency, a capacity that takes shape through the constraining and exhausting dynamics of life in conditions of significant disadvantage.

中文翻译:

对抗“生命政治的道德科学”:理解抗病毒时代丙型肝炎治疗“不合规”

尽管新的丙型肝炎治疗方法比旧的基于干扰素的治疗方案有了巨大的进步,但仍有一些人尚未接受治疗,以及一些已经开始但尚未完成治疗的人。在本文中,我们分析了澳大利亚一项关于治疗接受情况的研究项目进行的 50 次访谈。我们借鉴 Berlant (2007, Critical Inquiry , 33) 关于“缓慢死亡”的研究来分析所谓的“不合规”病例,即那些开始但没有完成治疗或不按照指示接受抗病毒治疗的病例。从生物医学的角度来看,此类活动与健康话语中普遍存在的进步、自我完善和理性积累的新自由主义价值观并不相符。然而,我们认为,将它们理解为主权和机构既不被简单地个体化也不被否认的情况,并且“不连贯、心烦意乱和习惯化的模式”被理解为与“深思熟虑和深思熟虑的活动”共存的情况更具启发性。 [……]在可预测生命的繁殖中”(Berlant,2007,第 754 页)。分析的叙述强调了多种直接和间接的消耗力量,并有力地证明了社会产生的代理特征,这种能力是通过在严重不利的条件下生活的限制和疲惫动态而形成的。
更新日期:2023-09-23
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