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From study plans to capacity building: a journey towards health equity in cancer survivorship
Cancer Causes & Control ( IF 2.3 ) Pub Date : 2023-10-18 , DOI: 10.1007/s10552-023-01808-6
Prajakta Adsul 1 , Jessica D Austin 2 , Perla Chebli 3 , Emanuelle M Dias 4 , Rachel Hirschey 5 , Priyanka Ravi 6 , Aaron T Seaman 7 , Rosi Vogel 6
Affiliation  

This article highlights the importance of pausing and reflecting on one's motivation, capacity, and positionality when engaging in health equity research and encourages researchers to engage in critical self-reflection and contribute to the ongoing dialogue on the ethical conduct of health equity-focused cancer research. In response to the urgent need to address health disparities and improve health equity in cancer survivorship care, the Cancer Prevention and Control Research Network (CPCRN) Survivorship workgroup discussed developing a study focused on understanding how racism impacts patient engagement in cancer survivorship care. However, during the study's development, the workgroup recognized limitations in research team composition and infrastructure. The workgroup engaged in critical self-reflections, individually and collectively, leading to the halting of the research study. Consequently, they redirected their efforts towards strengthening the necessary infrastructure for conducting such research, including diverse investigator representation and equitable partnerships with cancer survivors. The description of this process, along with suggestions for reflection, may be helpful and informative to other researchers and research networks seeking to center marginalized voices and work in partnership to address healthcare and health equity.



中文翻译:

从研究计划到能力建设:癌症生存健康公平之旅

本文强调了在参与健康公平研究时暂停和反思个人动机、能力和立场的重要性,并鼓励研究人员进行批判性的自我反思,并为以健康公平为重点的癌症研究的道德行为的持续对话做出贡献。为了满足解决癌症生存护理中的健康差异和改善健康公平性的迫切需要,癌症预防和控制研究网络 (CPCRN) 生存工作组讨论了开展一项研究,重点了解种族主义如何影响患者参与癌症生存护理。然而,在研究的发展过程中,工作组认识到研究团队组成和基础设施的局限性。工作组进行了个人和集体的批判性自我反思,导致研究停止。因此,他们将努力转向加强开展此类研究所需的基础设施,包括多样化的研究者代表以及与癌症幸存者的公平伙伴关系。对这一过程的描述以及反思建议可能会对寻求集中边缘化声音并合作解决医疗保健和健康公平问题的其他研究人员和研究网络有所帮助和提供信息。

更新日期:2023-10-18
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