Our current understanding of adaptation in families of individuals with Down syndrome (DS) is based primarily on findings from studies focused on participants from a single country. Guided by the Resiliency Model of Family Stress, Adjustment, and Adaptation, the purpose of this cross-country investigation, which is part of a larger, mixed methods study, was twofold: (1) to compare family adaptation in 12 countries, and (2) to examine the relationships between family variables and family adaptation. The focus of this study is data collected in the 12 countries where at least 30 parents completed the survey. Descriptive statistics were generated, and mean family adaptation was modeled in terms of each predictor independently, controlling for an effect on covariates. A parsimonious composite model for mean family adaptation was adaptively generated. While there were cross-country differences, standardized family adaptation mean scores fell within the average range for all 12 countries. Key components of the guiding framework (i.e., family demands, family appraisal, family resources, and family problem-solving communication) were important predictors of family adaptation. More cross-country studies, as well as longitudinal studies, are needed to fully understand how culture and social determinants of health influence family adaptation in families of individuals with DS.

中文翻译：

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来自 12 个国家的唐氏综合症患者家庭的家庭适应情况

我们目前对唐氏综合症 (DS) 患者家庭适应的理解主要基于针对单个国家参与者的研究结果。在家庭压力、调整和适应弹性模型的指导下，这项跨国调查是一项更大规模的混合方法研究的一部分，其目的有两个：(1) 比较 12 个国家的家庭适应情况，以及( 2）考察家庭变量与家庭适应之间的关系。本研究的重点是在 12 个国家/地区收集的数据，其中至少有 30 名家长完成了调查。生成描述性统计数据，并根据每个预测因子独立地对平均家庭适应进行建模，控制对协变量的影响。自适应地生成了平均家庭适应的简约复合模型。尽管存在跨国差异，但所有 12 个国家的标准化家庭适应平均得分均落在平均范围内。指导框架的关键组成部分（即家庭需求、家庭评价、家庭资源和家庭解决问题的沟通）是家庭适应的重要预测因素。需要更多的跨国研究和纵向研究，以充分了解健康的文化和社会决定因素如何影响 DS 患者家庭的适应。