We conducted a scoping review to characterize the role of caregiver involvement in behavior-analytic research. We reviewed eight behavioral-learning journals from 2011–2022 for works that included children or caregivers as participants and characterized caregiver involvement as passive (implications for caregivers, input, social validity) and active (implementation, caregiver behavior, training, caregiver-collected data). The review identified 228 studies, and almost all (96.1%; n = 219) involved caregivers in some capacity; 94.3% (n = 215) had passive involvement (26.8% had only passive involvement; n = 61), 69.3% (n = 158) had active involvement (1.8% had only active involvement; n = 4), and 3.9% (n = 9) had neither passive nor active involvement. Involvement generally increased over publication years. The most common types of involvement were implications for caregivers, implementation, and input; caregiver-collected data were rare. We propose considerations when engaging caregivers in research and suggest new avenues of inquiry related to caregivers' treatment objectives and social validity, treatment implementers, and caregiver-collected data.

中文翻译：

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护理人员参与应用行为分析研究：范围界定审查和讨论

我们进行了范围界定审查，以描述护理人员参与行为分析研究的作用。我们回顾了 2011 年至 2022 年八本行为学习期刊，其中包括儿童或看护者作为参与者，并将看护者参与描述为被动（对看护者的影响、输入、社会有效性）和主动（实施、看护者行为、培训、看护者收集的数据） ）。该审查确定了 228 项研究，几乎所有研究（96.1%；n  = 219）都以某种身份涉及护理人员；94.3% ( n  = 215) 被动参与（26.8% 仅被动参与；n  = 61），69.3% ( n =  158) 主动参与（1.8% 仅主动参与；n  = 4），3.9% ( n = 4) n  = 9) 既没有被动参与也没有主动参与。随着出版年份的推移，参与度普遍增加。最常见的参与类型是对护理人员、实施和投入的影响；护理人员收集的数据很少。我们提出了让护理人员参与研究时的注意事项，并提出了与护理人员的治疗目标和社会有效性、治疗实施者以及护理人员收集的数据相关的新的调查途径。