Caregiver burden is a term that refers to the adverse effect of caregiving on the physical, emotional, social, spiritual, and financial well-being of the caregiver. Caregiver burden is associated with providing care to an individual with a chronic illness or disability, and the unique symptoms of Parkinson disease (PD) can amplify a patient's needs and reliance on others, leading to adverse outcomes for patients and their caregivers. In this scoping review of the literature from January 2017 through April 2022 that included 114 studies, we provide an updated, evidence-based summary of patient and caregiver-related factors that contribute to caregiver burden in PD. We also describe the impact of caregiver stress and burden on caregivers based on qualitative research studies and review recent interventions to mitigate burden. By providing clinical updates for practitioners, this review is designed to improve recognition of caregiver burden in the post-pandemic era and foster the development of targeted interventions to reduce caregiver burden in PD.

中文翻译：

---

帕金森病的护理人员负担：2017-2022 年文献范围界定回顾。

照顾者负担是指照顾者对身体、情感、社会、精神和经济健康造成的不利影响。护理人员的负担与向患有慢性疾病或残疾的个人提供护理有关，帕金森病 (PD) 的独特症状可能会放大患者的需求和对他人的依赖，从而导致患者及其护理人员出现不良后果。在这篇对 2017 年 1 月至 2022 年 4 月包含 114 项研究的文献的范围审查中，我们提供了一份最新的、基于证据的总结，总结了导致 PD 护理人员负担的患者和护理人员相关因素。我们还根据定性研究描述了护理人员压力和负担对护理人员的影响，并回顾了最近减轻负担的干预措施。通过为从业者提供临床更新，本次综述旨在提高对大流行后时代护理人员负担的认识，并促进制定有针对性的干预措施，以减轻帕金森病护理人员的负担。