Background. Knowledge about the needs of parents with neurological disorders who take care of young children is limited. Purpose. The overall aim of this qualitative study was to explore the perceived unmet parent needs, current supports, and potential solutions to optimize supports of parents with neurological disorders in early childhood in a Canadian setting. Method. Focus groups and individual interviews with parents (n  =  8), spouses (n  =  5), rehabilitation clinicians (n  =  8), community partners (n  =  7), and researchers (n  =  7) were conducted with a total of 35 participants recruited using convenience sampling. Inductive iterative thematic analysis was performed. Findings. The participants identified the need for society to officially recognize parenting with disabilities, adjust public policies, increase the scope of public programs, consider child development and family well-being, and have barrier-free communities. Conclusion. Providing customized solutions that will adequately fill perceived service gaps is of utmost importance to address these families' needs.

中文翻译：

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“什么服务？”：利益相关者认为患有神经系统疾病的父母的支持需求未得到满足。

背景。对照顾幼儿的患有神经系统疾病的父母的需求了解有限。目的。这项定性研究的总体目标是探讨加拿大环境中未满足的家长需求、当前的支持以及优化对儿童早期患有神经系统疾病的父母的支持的潜在解决方案。方法。对父母 (n = 8)、配偶 (n = 5)、康复临床医生 (n = 8)、社区合作伙伴 (n = 7) 和研究人员 (n = 7) 进行了焦点小组访谈和个人访谈，总共 35 名参与者使用便利抽样招募参与者。进行了归纳迭代主题分析。发现。与会者指出，社会需要正式承认残疾育儿、调整公共政策、扩大公共项目范围、考虑儿童发展和家庭福祉以及建立无障碍社区。结论。提供能够充分填补感知服务差距的定制解决方案对于满足这些家庭的需求至关重要。