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Pediatric palliative care in Sweden
Current Problems in Pediatric and Adolescent Health Care ( IF 1.6 ) Pub Date : 2023-11-22 , DOI: 10.1016/j.cppeds.2023.101455
Charlotte Castor 1 , Kerstin Ivéus 2 , Ulrika Kreicbergs 3
Affiliation  

In Sweden, the governance of healthcare is decentralized, so PC is provided with regional or local differences in organization, level of competence, and recourses. Ongoing regional and national initiative to increase quality of pediatric palliative care in Sweden aligns with the international standard of pediatric palliative care as a care directed towards all children with life-threatening or life-limiting illness or conditions from the time of diagnosis. Examples of such initiatives and of different care-services providing pediatric palliative care will be presented. Finally a case to highlighting how a child's care needs might change throughout the illness trajectory and how various healthcare facilities and organizations when collaborating can support the child's participation in decision making is presented.



中文翻译:

瑞典的儿科姑息治疗

在瑞典,医疗保健的治理是分散的,因此 PC 在组织、能力水平和资源方面存在区域或地方差异。瑞典正在进行的旨在提高儿科姑息治疗质量的区域和国家举措符合儿科姑息治疗的国际标准,作为一种针对所有自诊断之日起患有危及生命或限​​制生命的疾病或状况的儿童的护理。将介绍此类举措以及提供儿科姑息治疗的不同护理服务的示例。最后,介绍了一个案例,强调儿童的护理需求在整个疾病轨迹中可能如何变化,以及各种医疗机构和组织在合作时如何支持儿童参与决策。

更新日期:2023-11-23
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