当前位置: X-MOL 学术Clin. Child Psychol. Psychiatry › 论文详情
Our official English website, www.x-mol.net, welcomes your feedback! (Note: you will need to create a separate account there.)
Evaluating end of treatment care of young people with cancer.
Clinical Child Psychology and Psychiatry ( IF 1.8 ) Pub Date : 2023-09-29 , DOI: 10.1177/13591045231204073
Eve Twivy 1 , Helen Griffiths 2 , Matthew Td Knight 1
Affiliation  

BACKGROUND Existing literature implies there may be gaps in post-treatment support for young people with cancer. This service evaluation explored the needs and experiences of young people when ending cancer treatment in a UK children's hospital to inform service provisions. METHODS Semi-structured interviews were conducted with nine young people, aged 13-18 years, who had finished active cancer treatment and were receiving follow-up care. The data was analysed using thematic analysis. RESULTS Four main themes were developed: being in the dark (i.e. limited awareness of what happens when treatment ends); separation from the hospital (i.e. the loss of valued support from staff); consequences of cancer (i.e. managing ongoing psychological and physical effects); and getting back to normal life (i.e. shifting from hospital to everyday life). CONCLUSIONS Recommendations for improving clinical practice were made. Greater preparedness for ending treatment could be achieved by clearly setting out ongoing care arrangements, providing resource packs, having opportunities to mark the end of treatment, and offering peer support. To identify specific post-treatment needs, there should be an end of treatment multidisciplinary review and space for young people to share how they are feeling in follow-up medical appointments.

中文翻译:

评估患有癌症的年轻人的治疗结束护理。

背景现有文献表明,对患有癌症的年轻人的治疗后支持可能存在差距。这项服务评估探讨了年轻人在英国儿童医院结束癌症治疗时的需求和经历,以便为服务提供提供信息。方法 对 9 名年龄在 13-18 岁之间、已完成积极癌症治疗并正在接受后续护理的年轻人进行半结构化访谈。使用主题分析对数据进行分析。结果 制定了四个主题: 处于黑暗中(即对治疗结束时会发生什么的认识有限);离开医院(即失去工作人员的宝贵支持);癌症的后果(即管理持续的心理和身体影响);并恢复正常生活(即从医院转向日常生活)。结论 提出了改善临床实践的建议。通过明确制定持续的护理安排、提供资源包、有机会标记治疗结束以及提供同伴支持,可以为结束治疗做好更好的准备。为了确定治疗后的具体需求,应该在治疗结束时进行多学科审查,并为年轻人提供在后续医疗预约中分享他们感受的空间。
更新日期:2023-09-29
down
wechat
bug