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“It changed everything we do”: A mixed methods study of youth and parent experiences with a pilot exercise education intervention following new diagnosis of type 1 diabetes
Journal of Diabetes and its Complications ( IF 3 ) Pub Date : 2023-11-24 , DOI: 10.1016/j.jdiacomp.2023.108651
Molly L. Tanenbaum , Ananta Addala , Sarah Hanes , Victor Ritter , Franziska K. Bishop , Ana L. Cortes , Erica Pang , Korey K. Hood , David M. Maahs , Dessi P. Zaharieva

Aims

This pilot study delivered a comprehensive exercise education intervention to youth with new-onset type 1 diabetes (T1D) and their parents to increase knowledge and confidence with physical activity (PA) shortly after diagnosis.

Methods

Youth initiated continuous glucose monitoring (CGM) and PA trackers within 1 month of diagnosis. Youth and their parents received the 4-session intervention over 12 months. Participants completed self-report questionnaires at baseline, 6- and 12-months. Surveys were analyzed using linear mixed effects models. Semi-structured interviews and focus groups explored experiences with the exercise education intervention. Groups and interviews were audio-recorded, transcribed, and analyzed using content analysis.

Results

A total of 16 parents (aged 46 ± 7 years; 88 % female; 67 % non-Hispanic White) and 17 youth (aged 14 ± 2 years; 41 % female; 65 % non-Hispanic White) participated. Worry about hypoglycemia did not worsen throughout the study duration. Parents and youth reported increased knowledge and confidence in managing T1D safely and preventing hypoglycemia during PA following receiving the tailored exercise education intervention.

Conclusion

This study assessed a novel structured exercise education program for youth and their parents shortly following T1D diagnosis. These results support the broad translation and acceptability of a structured exercise education program in new-onset T1D.



中文翻译:

“它改变了我们所做的一切”:针对青少年和家长在新诊断出 1 型糖尿病后进行试点运动教育干预的体验的混合方法研究

目标

这项试点研究为新发 1 型糖尿病 (T1D) 青少年及其父母提供了全面的运动教育干预,以在诊断后不久增加对体育活动 (PA) 的了解和信心。

方法

青少年在诊断后 1 个月内启动连续血糖监测 (CGM) 和 PA 追踪器。青少年及其父母在 12 个月内接受了 4 次干预。参与者在基线、6 个月和 12 个月时完成了自我报告问卷。使用线性混合效应模型对调查进行分析。半结构化访谈和焦点小组探讨了运动教育干预的经验。对小组和访谈进行录音、转录,并使用内容分析进行分析。

结果

共有 16 名家长(年龄 46 ± 7 岁;88% 女性;67% 非西班牙裔白人)和 17 名青少年(年龄 14 ± 2 岁;41% 女性;65% 非西班牙裔白人)参与。在整个研究期间,对低血糖的担忧并未恶化。家长和青少年表示,在接受量身定制的运动教育干预后,他们对安全管理 T1D 和预防 PA 期间低血糖的知识和信心有所增加。

结论

这项研究评估了在 T1D 诊断后不久针对青少年及其父母的新颖的结构化运动教育计划。这些结果支持结构化运动教育计划在新发 T1D 中的广泛转化和可接受性。

更新日期:2023-11-24
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