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Transition from child to adult services for young people with cerebral palsy in Ireland: Influencing factors at multiple ecological levels.
Developmental Medicine & Child Neurology ( IF 3.8 ) Pub Date : 2023-10-17 , DOI: 10.1111/dmcn.15778
Jennifer Fortune 1 , Jennifer M Ryan 1 , Aisling Walsh 1 , Michael Walsh 2 , Claire Kerr 3 , Thilo Kroll 4 , Grace Lavelle 5 , Mary Owens 2 , Owen Hensey 2 , Meriel Norris 6
Affiliation  

AIM To explore the factors that influence the process of transitioning from child to adult services in Ireland among young people with cerebral palsy, their parents, and service providers. METHOD This study followed a qualitative descriptive approach. Semi-structured interviews were conducted with 54 participants, including young people with cerebral palsy aged 16 to 22 years (n = 13), their parents (n = 14), and service providers (n = 27). Data were analysed using the Framework Method. Findings were categorized using an ecological model across four levels: individual, microsystem, mesosystem, and exosystem. RESULTS Limited awareness, preparation, and access to information hindered successful transition. Microsystem factors such as family knowledge, readiness, resilience, and health professional expertise influenced transition experience. Mesosystem factors encompassed provider-family interaction, interprofessional partnerships, and interagency collaboration between child and adult services. Exosystem factors included inadequate availability and distribution of adult services, limited referral options, coordination challenges, absence of transition policies, staffing issues, and funding allocation challenges. INTERPRETATION Transition is influenced by diverse factors at multiple ecological levels, including interactions within families, between health professionals, and larger systemic factors. Given the complexity of transition, a comprehensive multi-level response is required, taking into account the interactions among individuals, services, and systems.

中文翻译:

爱尔兰脑瘫年轻人从儿童到成人服务的转变:多个生态层面的影响因素。

目的 探讨影响爱尔兰脑瘫青少年、他们的父母和服务提供者从儿童服务过渡到成人服务过程的因素。方法 本研究采用定性描述方法。对 54 名参与者进行了半结构化访谈,其中包括 16 至 22 岁的脑瘫年轻人 (n = 13)、他们的父母 (n = 14) 和服务提供者 (n = 27)。使用框架方法分析数据。使用生态模型对研究结果进行分类,分为四个层次:个体、微系统、中系统和外系统。结果 认识、准备和信息获取有限阻碍了成功的转型。家庭知识、准备情况、复原力和健康专业知识等微系统因素影响过渡经历。中系统因素包括提供者与家庭的互动、专业间的伙伴关系以及儿童和成人服务之间的机构间合作。外系统因素包括成人服务的可用性和分配不足、转诊选择有限、协调挑战、缺乏过渡政策、人员配置问题和资金分配挑战。解释 转变受到多个生态层面的多种因素的影响,包括家庭内部、卫生专业人员之间的相互作用以及更大的系统因素。鉴于转型的复杂性,需要采取全面的多层次应对措施,同时考虑到个人、服务和系统之间的相互作用。
更新日期:2023-10-17
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