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Care Needs of Parents of Children With Cancer in a Low-Middle-Income Country.
Journal of Pediatric Hematology/Oncology Nursing ( IF 1.7 ) Pub Date : 2023-10-26 , DOI: 10.1177/27527530231193972
Aprille Campos Banayat 1 , Peter James B Abad 1 , Sheila R Bonito 1 , Lydia T Manahan 1 , Arnold B Peralta 1
Affiliation  

Background: Mapping out actual supportive care needs assists nurses in providing holistic individualized care. This study aimed to explore the care needs of parents of children with cancer in the Philippines. Method: Guided by the Supportive Care Needs Framework (SCNF), this study used an embedded mixed-method design with the quantitative revised Cancer Patient Needs Questionnaire and qualitative semistructured interviews to describe parents' care needs and priorities. Results: Filipino parents (N = 156) of children with cancer have various care needs which could be classified along the SCNF categories-practical, informational, spiritual, physical, emotional, and physical needs as ranked from highest to lowest. A number of variables were significantly associated with care needs. Solid tumor diagnosis was associated with greater practical, emotional, and psychosocial care needs; having a child who had undergone surgery was associated with more practical and spiritual care needs; and being within one year of the child's diagnosis was associated with practical, psychosocial, and spiritual care needs. Parent priority needs included (a) addressing financial needs; (b) access to temporary housing to minimize treatment-related costs; (c) support groups among parents of children with cancer as a source of information; (d) financial and social support between members of family and partners of parents of children with cancer; and (e) using prayer to facilitate acceptance. Conclusions: Supportive care needs of parents of children with cancer are important components of care that should be given recognition to enhance holistic individualized care throughout the childhood cancer experience.

中文翻译:

中低收入国家癌症儿童父母的护理需求。

背景:确定实际的支持性护理需求有助于护士提供全面的个性化护理。本研究旨在探讨菲律宾癌症儿童父母的护理需求。方法:在支持性护理需求框架(SCNF)的指导下,本研究采用嵌入式混合方法设计,结合定量修订的癌症患者需求问卷和定性半结构化访谈来描述父母的护理需求和优先事项。结果:患有癌症的儿童的菲律宾父母 (N = 156) 有各种护理需求,这些需求可以按照 SCNF 类别进行分类——实用、信息、精神、身体、情感和身体需求,按从最高到最低的顺序排列。许多变量与护理需求显着相关。实体瘤诊断与更大的实际、情感和社会心理护理需求相关;生育接受过手术的孩子与更实际和精神上的照顾需求相关;孩子确诊后一年内与实际、心理和精神护理需求相关。家长的优先需求包括 (a) 解决财务需求;(b) 获得临时住房以尽量减少与治疗相关的费用;(c) 癌症儿童父母支持团体作为信息来源;(d) 癌症儿童父母的家庭成员和伴侣之间的经济和社会支持;(e) 通过祈祷来促进接受。结论:癌症儿童父母的支持性护理需求是护理的重要组成部分,应予以认可,以在整个儿童癌症经历中加强整体个性化护理。
更新日期:2023-10-26
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