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Resilience and family quality of life in parents of children with autism spectrum disorders.
Clinical Child Psychology and Psychiatry ( IF 1.8 ) Pub Date : 2023-11-01 , DOI: 10.1177/13591045231208577
Federico Cardelle-Pérez 1 , Cristina Banacloig-Delgado 1 , Lorena García-García 1
Affiliation  

INTRODUCTION Resilience and quality of life (QOL) can involve a positive approach in group interventions for parents of children with autism spectrum disorders (ASD). This study aims to evaluate resilience and family QOL at the start of a psychoeducational group. METHODS Cross-sectional assessment of resilience and family QOL used the Family Quality of Life Scale (ECVF) and 14-item Resilience Scale (RS-14). RESULTS The study group showed high levels of resilience. Parents considered the resources/support domain crucial, although satisfaction in this area was comparatively lower. Concerns about low satisfaction with available resources and support were notable. Gender differences were observed but not statistically significant. DISCUSSION The study's findings support prior research on parental resilience in families of children with ASD. The literature on the QOL for these families presents mixed findings. The importance of parental involvement in service planning is highlighted. CONCLUSIONS This study emphasizes the importance of resilience in parents of children with ASD, suggesting it as a potential therapeutic target. The findings underscore the need to address the perceived low quality of available resources and support. Further investigation is needed.

中文翻译:

自闭症谱系障碍儿童父母的适应能力和家庭生活质量。

引言 对于自闭症谱系障碍 (ASD) 儿童的父母来说,心理弹性和生活质量 (QOL) 需要采取积极的团体干预方法。本研究旨在评估心理教育小组开始时的复原力和家庭生活质量。方法 使用家庭生活质量量表 (ECVF) 和 14 项复原力量表 (RS-14) 对复原力和家庭 QOL 进行横断面评估。结果 研究组表现出高水平的复原力。家长认为资源/支持领域至关重要,尽管这方面的满意度相对较低。对现有资源和支持满意度低的担忧值得注意。观察到性别差异,但没有统计学意义。讨论 该研究的结果支持了先前关于自闭症谱系障碍儿童家庭的父母复原力的研究。关于这些家庭生活质量的文献提出了不同的结果。强调了家长参与服务规划的重要性。结论 这项研究强调了自闭症谱系障碍儿童父母的复原力的重要性,表明它是一个潜在的治疗目标。调查结果强调需要解决可用资源和支持质量低下的问题。需要进一步调查。
更新日期:2023-11-01
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