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Risk, trust, and altruism in genetic data sharing
Journal of Public Economic Theory ( IF 1.336 ) Pub Date : 2023-11-23 , DOI: 10.1111/jpet.12678
Zeeshan Samad 1 , Myrna Wooders 2 , Bradley Malin 3 , Yevgeniy Vorobeychik 4
Affiliation  

How does concern about genetic data privacy compare with other concerns? We conduct behavioral experiments to compare risk attitudes towards sharing genetic data with a healthcare provider with risk attitudes towards sharing financial data with a money manager. Both scenarios involve identical decisions and monetary stakes, permitting us to focus on how the framing of data sharing influences attitudes. To delve deeper into individual motivations to share data, we provide treatments that study how data sharers' altruism and trust affect their decisions. Our findings (with 162 subjects) indicate that individuals are more willing to risk a loss to privacy of genetic data (for an anticipated return framed as health benefits) than they are to risk loss of financial data (for an anticipated return in financial benefits). We also find that 50%–60% of data recipients choose to protect another person's data, with no significant differences between frames.

中文翻译:

遗传数据共享中的风险、信任和利他主义

对基因数据隐私的担忧与其他担忧相比如何?我们进行行为实验,以比较与医疗保健提供者共享基因数据的风险态度和与资金管理者共享财务数据的风险态度。这两种情况都涉及相同的决策和金钱风险,使我们能够专注于数据共享的框架如何影响态度。为了更深入地研究个人共享数据的动机,我们提供了研究数据共享者的利他主义和信任如何影响他们的决策的方法。我们的研究结果(162 名受试者)表明,个人更愿意冒失去遗传数据隐私的风险(为了获得健康益处的预期回报),而不是冒失去财务数据的风险(为了获得预期的经济利益回报) 。我们还发现 50%–60% 的数据接收者选择保护他人的数据,框架之间没有显着差异。
更新日期:2023-11-23
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