PURPOSE The purpose of this work was to describe input from key partners to inform the scope and priorities for a clinical practice guideline (CPG) pertaining to physical therapy services provided to children and youth with Down syndrome (DS). METHODS A 68-item survey was completed by interventionists and parents (n = 296) of children and youth with DS. RESULTS The most prevalent physical therapy interventions currently being performed included tummy time, postural control activities, activity-based interventions, and play-based interventions. Key partners agreed on the importance of specific clinical outcomes, needing guidance on frequency and dosage of interventions, common barriers to physical therapy intervention, and needing information for discharge criteria in a future CPG. CONCLUSIONS The results of this survey have given the CPG committee the necessary information to inform the CPG process for children and youth with DS.

中文翻译：

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为患有唐氏综合症的儿童和青少年提供临床实践指南：主要合作伙伴的调查。

目的 这项工作的目的是描述主要合作伙伴的意见，以告知与向患有唐氏综合症 (DS) 的儿童和青少年提供的物理治疗服务有关的临床实践指南 (CPG) 的范围和优先事项。方法 由干预专家和患有 DS 的儿童和青少年的家长 (n = 296) 完成了一项包含 68 项的调查。结果 目前最流行的物理治疗干预措施包括俯卧时间、姿势控制活动、基于活动的干预措施和基于游戏的干预措施。主要合作伙伴一致认为特定临床结果的重要性，需要干预频率和剂量的指导，物理治疗干预的常见障碍，以及需要未来 CPG 出院标准的信息。结论 这项调查的结果为 CPG 委员会提供了必要的信息，以告知患有 DS 的儿童和青少年的 CPG 流程。