Introduction

The disclosure of information that identifies deceased organ donors and/or organ transplant recipients by organ donation agencies and transplant centres is regulated in Australia by state and territory legislation, yet a significant number of donor family members and transplant recipients independently establish contact with each other.

Aim

To describe and synthesize Australian laws and guidelines on the disclosure of identifying information.

Method

Legislation and guidelines relevant to organ donation and transplantation were obtained following a search of government and DonateLife network websites. Information about the regulation of identity disclosure was extracted and synthesised using a process guided by Walt and Gilson’s (1994) policy analysis framework.

Findings

Nineteen documents were examined. Six guidelines refer to and were consistent with current legislation. Four documents did not address identity disclosure. All jurisdictions prohibit healthcare professionals from disclosing identifying information. In three states, the prohibition extends to all members of the public including donor family members and transplant recipients.

Conclusion

Restrictions on identity disclosure have implications for public promotion of donation and transplantation where sharing of stories and images of organ donors and transplant recipients is common. Further research is required to understand the perspective of donor family members, transplant recipients, and healthcare professionals impacted by the current laws.

中文翻译：

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捐赠者家庭成员和器官移植接受者之间的身份披露：澳大利亚法律和准则的描述和综合

介绍

在澳大利亚，器官捐献机构和移植中心披露已故器官捐献者和/或器官移植接受者身份的信息受到州和领地立法的监管，但仍有大量捐献者家庭成员和移植接受者独立地相互建立联系。

目的

描述和综合澳大利亚有关身份信息披露的法律和准则。

方法

通过搜索政府和 DonateLife 网络网站，获得了与器官捐献和移植相关的立法和指南。有关身份披露监管的信息是使用 Walt 和 Gilson（1994）政策分析框架指导的过程提取和综合的。

发现

审查了十九份文件。六项指导方针参考了现行立法并与现行立法保持一致。有四份文件没有提及身份披露问题。所有司法管辖区都禁止医疗保健专业人员披露身份信息。在三个州，该禁令适用于所有公众，包括捐赠者家庭成员和移植受者。

结论

对身份披露的限制对公众促进捐赠和移植具有影响，在这种情况下，分享器官捐赠者和移植接受者的故事和图像是很常见的。需要进一步的研究来了解受现行法律影响的捐赠者家庭成员、移植受者和医疗保健专业人员的观点。