What, how and when do families communicate about ALS? A qualitative exploration of parents’ and children’s perceptions,Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

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What, how and when do families communicate about ALS? A qualitative exploration of parents’ and children’s perceptions
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration ( IF 2.8 ) Pub Date : 2023-12-09 , DOI: 10.1080/21678421.2023.2290738
Marion Sommers-Spijkerman _{1,

2} , Anna Stukker ₁ , Melinda S. Kavanaugh ₃ , Marjolijn Ketelaar _{1,

2} , Johanna M. A. Visser-Meily _{1,

2} , Anita Beelen _{1,

2}

Affiliation

Objectives: In families with a parent diagnosed with amyotrophic lateral sclerosis (ALS), children’s adaptation depends among others on how their parents communicate with them about the disease and...

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