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Congenital melanocytic naevus (CMN) through the lens: Using photo-elicitation interviews to explore adjustment in adolescents with a rare birthmark condition
Body Image ( IF 5.580 ) Pub Date : 2023-12-12 , DOI: 10.1016/j.bodyim.2023.101656
Ella Guest , Heidi Williamson , Diana Harcourt

Adolescents with the rare birthmarks congenital melanocytic naevi (CMN) experience physical and psychosocial challenges, many of which stem from looking different from the ‘norm’. However, some adjust and have positive experiences. Understanding the lived experiences of adolescents who have adjusted to CMN can provide a holistic picture of adjustment and inform the development of support and interventions for others with the condition. Open, participant-driven photo-elicitation interviews were conducted with four White females (15–17 years) who self-identified as having adjusted to CMN. Participants chose five photographs which were used to guide the interviews (47–80 min). Interpretative phenomenological analysis (IPA) was used to analyse the transcribed interview data. Three superordinate themes were identified: ‘Accepting My ‘True’ Self’ (1), ‘I am Not Alone in This’ (2), and ‘Developing as a Person’ (3). The themes related to accepting CMN as part of their identity, developing a positive body image (e.g., body appreciation, broad conceptualisations of beauty, body image flexibility), feeling supported and accepted by family, friends, and others with CMN, and developing adaptive coping skills. Findings suggest positive body image may be important for adjustment and can be determined by an individual. The benefits of using photo-elicitation within appearance research are discussed.

中文翻译:

镜头中的先天性黑素细胞痣(CMN):利用照片启发访谈来探索患有罕见胎记病症的青少年的调整

患有罕见胎记先天性黑素细胞痣(CMN)的青少年会经历身体和心理社会挑战,其中许多挑战源于外表与“正常”不同。然而,有些人进行了调整并获得了积极的经验。了解已适应 CMN 的青少年的生活经历可以提供适应的整体情况,并为其他患有这种疾病的人提供支持和干预措施。对四名自称已适应 CMN 的白人女性(15-17 岁)进行了公开的、参与者驱动的照片启发式访谈。参与者选择了五张照片用于指导采访(47-80 分钟)。使用解释现象学分析(IPA)来分析转录的访谈数据。确定了三个最重要的主题:“接受我的‘真实’自我”(1)、“我并不孤单”(2) 和“作为一个人的发展”(3)。主题涉及接受 CMN 作为其身份的一部分、发展积极的身体形象(例如,身体欣赏、美的广泛概念、身体形象的灵活性)、感受到家人、朋友和其他患有 CMN 的人的支持和接受,以及发展适应性应对技巧。研究结果表明,积极的身体形象对于调整可能很重要,并且可以由个人决定。讨论了在外观研究中使用照片诱导的好处。
更新日期:2023-12-12
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