Best clinical practice in the treatment of juvenile systemic sclerosis: expert panel guidance - the result of the International Hamburg Consensus Meeting December 2022,Expert Review of Clinical Immunology

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Best clinical practice in the treatment of juvenile systemic sclerosis: expert panel guidance - the result of the International Hamburg Consensus Meeting December 2022
Expert Review of Clinical Immunology ( IF 4.4 ) Pub Date : 2024-01-02 , DOI: 10.1080/1744666x.2023.2298354
Ivan Foeldvari ₁ , Kathryn S. Torok ₂ , Jordi Antón ₃ , Michael Blakley ₄ , Tamás Constantin ₅ , Maurizio Cutolo ₆ , Christopher P. Denton ₇ , Kim Fligelstone ₈ , Bernd Hinrichs ₉ , Suzanne C. Li ₁₀ , Susan Maillard ₁₁ , Edoardo Marrani ₁₂ , Pia Moinzadeh ₁₃ , Catherine H. Orteu ₁₄ , Clare E. Pain ₁₅ , John D. Pauling _{16,

17,

18} , Clarissa Pilkington ₁₁ , Franziska Rosser ₂ , Vanessa Smith _{19,

20,

21} , Daniel F. Furst ₂₂

Affiliation

Hamburg Centre for Pediatric and Adolescent Rheumatology, Schön Klinik Hamburg Eilbek, Hamburg, Germany
University of Pittsburgh and University of Pittsburgh Medical Center Children’s Hospital of Pittsburgh, Pittsburgh, PA, USA
Department of Pediatric Rheumatology. Hospital Sant Joan de Déu and Universitat de Barcelona, Barcelona, Spain
Riley Hospital for Children at IU Health, Indiana University School of Medicine, Indianapolis, IN, USA
Unit of Pediatric Rheumatology, Tűzoltó Street Department, Pediatric Centre, Semmelweis University, Budapest, Hungary
Laboratory of Experimental Rheumatology and Academic Division of Clinical Rheumatology-Department of Internal Medicine and Specialties, University of Genoa and IRCCS San Martino Polyclinic Hospital, Genoa, Italy
UCL Division of Medicine, Royal Free London NHS Foundation Trust, London, UK
Scleroderma & Raynaud’s United Kindgom (SRUK) (Research Subcommittee, Patient Research Partner), FESCA, London, UK
Children’s pulmonology, Asklepios Klinik Nord – Heidberg, Hamburg, Germany
Hackensack University Medical Center, Hackensack, NJ, USA
Great Ormond Street Hospital, London, UK
Pediatric Rheumatology Unit, Meyer Children’s Hospital IRCCS, Florence, Italy
Department of Dermatology and Venereology, University Hospital Cologne, Cologne, Germany
UCL Institute of Immunity and Transplantation, Royal Free London NHS Foundation Trust, London, UK
Alder Hey Children’s Foundation NHS Trust, Liverpool, UK
Department of Internal Medicine, Ghent University, Ghent, Belgium
Department of Rheumatology, Ghent University Hospital, Ghent, Belgium
Unit for Molecular Immunology and Inflammation, VIB Inflammation Research Center (IRC), Ghent, Belgium and ERN ReCONNET
University of California, Los Angeles, CA, USA
University of Washington, Seattle, WA, USA
University of Florence, Florence, Italy
Division of Rheumatology Fellow, Geffen School of Medicine at the University of California in Los Angeles, Los Angeles, CA, USA

Juvenile systemic sclerosis (jSSc) is an orphan disease with a prevalence of 3 in 1,000,000 children. Currently there is only one consensus treatment guideline concerning skin, pulmonary and vascul...

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