Juvenile idiopathic arthritis (JIA) is a prevalent childhood chronic arthritis, often persisting into adulthood. Effective transitional care becomes crucial as these patients transition from pediatric to adult healthcare systems. Despite the concept of transitional care being recognized, its real-world implementation remains inadequately explored. This study aims to evaluate the thoughts and practices of healthcare providers regarding transitional care for JIA patients. A cross-sectional survey was conducted among pediatric and adult rheumatologists in Turkey. Based on the American Academy of Pediatrics’ six core elements of transitional care, the survey included 86 questions. The respondents’ demographic data, attitudes towards transitional care, and practical implementation were assessed. The survey included 48 rheumatologists, with 43.7% having a transition clinic. The main barriers to establishing transition programs were the absence of adult rheumatologists, lack of time, and financial constraints. Only 23.8% had a multidisciplinary team for transition care. Participants agreed on the importance of coordination and cooperation between pediatric and adult healthcare services. The timing of the transition process varied, with no consensus on when to initiate or complete it. Participants advocated for validated questionnaires adapted to local conditions to assess transition readiness. The study sheds light on the challenges and perspectives surrounding transitional care for JIA patients in Turkey. Despite recognized needs and intentions, practical implementation remains limited due to various barriers. Cultural factors and resource constraints affect the transition process. While acknowledging the existing shortcomings, the research serves as a ground for further efforts to improve transitional care and ensure better outcomes for JIA patients transitioning into adulthood.

中文翻译：

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为土耳其青少年特发性关节炎青少年制定标准化过渡护理计划：一项全国调查研究

幼年特发性关节炎 (JIA) 是一种常见的儿童慢性关节炎，通常持续到成年期。随着这些患者从儿科医疗系统过渡到成人医疗系统，有效的过渡护理变得至关重要。尽管过渡性护理的概念已得到认可，但其在现实世界中的实施仍未得到充分探索。本研究旨在评估医疗保健提供者对于幼年特发性关节炎患者过渡护理的想法和实践。在土耳其的儿科和成人风湿病学家中进行了一项横断面调查。该调查基于美国儿科学会过渡期护理的六大核心要素，包括 86 个问题。对受访者的人口统计数据、对过渡性护理的态度以及实际实施情况进行了评估。该调查包括 48 名风湿病专家，其中 43.7% 拥有过渡诊所。建立过渡计划的主要障碍是缺乏成人风湿病专家、缺乏时间和财务限制。只有 23.8% 拥有多学科团队来提供过渡护理。与会者一致认为儿科和成人医疗保健服务之间协调与合作的重要性。过渡过程的时间安排各不相同，对于何时启动或完成尚未达成共识。参与者主张采用适合当地条件的经过验证的调查问卷来评估过渡准备情况。该研究揭示了土耳其幼年特发性关节炎患者过渡护理面临的挑战和前景。尽管需求和意图得到认可，但由于各种障碍，实际实施仍然受到限制。文化因素和资源限制影响转型过程。在承认现有缺陷的同时，该研究为进一步努力改善过渡护理并确保 JIA 患者过渡到成年期提供更好的结果奠定了基础。