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“We're still alive, much to everyone's surprise”: The experience of trans older adults living with dementia in an ageist, cisgenderist, and cogniticist society
Journal of Aging Studies ( IF 2.707 ) Pub Date : 2024-01-16 , DOI: 10.1016/j.jaging.2024.101208
Alexandre Baril , Marjorie Silverman

Trans and non-binary older adults living with dementia experience forms of marginalization, pathologization, and discrimination embedded in epistemic violence that leads them to be mistreated and dismissed as knowledgeable subjects. Based on empirical findings from a Canadian study examining the experiences of trans and non-binary people living with dementia and their carers, we combat this epistemic violence by focusing on the first-hand narratives of this population and their carers. Narrative interviews were conducted with six participants ( = 6): four carers of trans and non-binary adults living with dementia and two trans (binary) people living with dementia. Through a thematic analysis, we examine the unique aspects of living with dementia as a trans or non-binary person. First, the findings show how cogniticism impacts the experience of gender identity and cisgenderism, for example through blocked surgeries, excessive gatekeeping, and not being taken seriously by practitioners. Second, the findings discuss how dementia impacts gender identity and cisgenderism, for example, by increasing the need for formal care that can in turn increase vulnerability to structural violence. Third, the findings illustrate how cisgenderism and gender identity impact the experience of dementia and cogniticism, for example by limiting care options and the ability to advocate for oneself. Fourth, the findings highlight the silo mentality among practitioners, since most of them do not work with an intersectional lens. The article concludes by offering recommendations.

中文翻译:

“我们还活着,这让每个人都感到惊讶”:在年龄歧视、顺性别歧视和认知主义社会中患有痴呆症的跨性别老年人的经历

患有痴呆症的跨性别和非二元性别老年人经历了认知暴力中的边缘化、病态化和歧视,导致他们被虐待并被视为有知识的主体而被排斥。根据加拿大一项研究的实证结果,该研究调查了患有痴呆症的跨性别者和非二元性别人士及其照顾者的经历,我们通过关注该人群及其照顾者的第一手叙述来对抗这种认知暴力。对六名参与者 (= 6) 进行了叙述性访谈:四名患有痴呆症的跨性别和非二元性别成年人的照顾者和两名患有痴呆症的跨性别(二元性别)人士。通过主题分析,我们研究了作为跨性别者或非二元性别者患有痴呆症的独特方面。首先,研究结果表明认知主义如何影响性别认同和顺性别主义的体验,例如通过手术受阻、过度把关以及不被从业者认真对待。其次,研究结果讨论了痴呆症如何影响性别认同和顺性别主义,例如,通过增加对正规护理的需求,从而增加对结构性暴力的脆弱性。第三,研究结果说明了顺性别主义和性别认同如何影响痴呆症和认知主义的经历,例如通过限制护理选择和为自己辩护的能力。第四,研究结果凸显了从业者的筒仓心态,因为他们中的大多数人不使用交叉镜头。文章最后提出了建议。
更新日期:2024-01-16
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