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1982 A new way of involving experts by experience in social care research
Age and Ageing ( IF 6.7 ) Pub Date : 2024-01-25 , DOI: 10.1093/ageing/afad246.101
J Faraday 1, 2 , B Brown 3 , N Brown 3 , D Rowland 3 , F Shenton 4 , A Hand 1, 5
Affiliation  

Introduction Meaningful involvement of experts by experience in the design of health and care research is now well-established as good practice (Staniszewska, 2018). For example, it is essential that the voices of residents and staff are properly heard in care homes research, since they provide important perspectives not necessarily shared by the wider multidisciplinary team (Shepherd et al. 2017). Nevertheless, there are concerns that involvement can be tokenistic, or vulnerable to power imbalances (Baines & de Bere, 2017; Jennings et al., 2018). Methods A care home in northeast England is working with researchers to pioneer a new approach to involvement, with residents and staff at the centre. The care home has helped to shape a number of research projects, for example a feasibility study of mealtime care training. In this study, an advisory group was set up initially within the care home itself, comprising residents, staff and family carers. Subsequently the group was joined by people from other care homes in the area, with support from the local authority. In parallel to this, health and social care professionals have contributed to the advisory group through one-to-one meetings with the researcher. Results Advisory group meetings in the care home have provided an inclusive and equitable platform for residents and staff to share their views on the research topic and design. Other stakeholders have been able to input into the project, but separately and in a way that has left room for key voices to be properly heard. Contributors have felt valued and are keen to continue in the process. Conclusion This study offers an alternative and authentic model for the involvement of experts by experience in social care research, inverting the more typical approach so that residents and staff are at the centre not the periphery.

中文翻译:

1982 一种利用社会关怀研究经验让专家参与的新方式

简介 拥有丰富经验的专家有意义地参与健康和护理研究设计现已被视为良好实践(Staniszewska,2018)。例如,在疗养院研究中正确听取居民和工作人员的声音至关重要,因为他们提供了更广泛的多学科团队不一定认同的重要观点(Shepherd 等,2017)。然而,有人担心参与可能是象征性的,或者容易受到权力失衡的影响(Baines & de Bere,2017;Jennings 等,2018)。方法 英格兰东北部的一家疗养院正在与研究人员合作,以居民和工作人员为中心,开创一种新的参与方法。该护理之家帮助制定了许多研究项目,例如进餐护理培训的可行性研究。在这项研究中,最初在疗养院内部成立了一个咨询小组,由居民、工作人员和家庭护理人员组成。随后,在当地政府的支持下,该地区其他护理院的人们也加入了该小组。与此同时,健康和社会保健专业人员通过与研究人员的一对一会议为咨询小组做出了贡献。结果 疗养院的咨询小组会议为居民和工作人员提供了一个包容且公平的平台,以分享他们对研究主题和设计的看法。其他利益相关者也能够为该项目提供意见,但都是单独的,并且以一种为关键声音留下适当倾听空间的方式。贡献者感到受到重视,并渴望继续这一过程。结论 本研究为具有社会关怀研究经验的专家参与提供了另一种真实的模式,颠倒了更典型的方法,使居民和工作人员处于中心而不是边缘。
更新日期:2024-01-25
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