Abstract

The unprecedented and growing number of cancer survivors requires comprehensive quality care that includes cancer surveillance, symptom management, and health promotion to reduce morbidity and mortality and improve quality of life. However, coordinated and sustainable survivorship care has been challenged by barriers at multiple levels. We outline the survivorship programs at Northwestern Medicine and the Robert H. Lurie Comprehensive Cancer Center that have evolved over two decades. Our current survivorship clinics comprise STAR (Survivors Taking Action and Responsibility) for adult survivors of childhood cancers; Adult Specialty Survivorship for survivors of breast, colorectal and testicular cancers, lymphomas, and leukemias; and Gynecologic Oncology Survivorship. Care provision models align with general, disease/treatment-specific, and integrated survivorship models, respectively. Reimbursement for survivorship services has been bolstered by institutional budget allocations. We have standardized survivor education, counseling, and referrals through electronic health record (EHR)-integrated survivorship care plan (SCP) templates that incorporate partial auto-population. We developed EHR-integrated data collection tools (e.g., dashboards; SmartForm, and registry) to facilitate data analytics, personalized patient referrals, and reports to the Commission on Cancer (CoC). We report to the CoC on SCP delivery, dietitian encounters, and DEXA scans. For the last decade, our Cancer Survivorship Institute has aligned the efforts of clinicians, researchers, and educators. The institute promotes evidence-based care, high-impact research, and state-of-the-science educational programs for professionals, survivors, and the community. Future plans include expansion of clinical services and funding for applied research centered on the unique needs of post-treatment cancer survivors.

Implications for Cancer Survivors

The survivorship programs at Northwestern Medicine and the Robert H. Lurie Comprehensive Cancer Center underscore the imperative for comprehensive, coordinated, and sustainable survivorship care to address the needs of increasing numbers of cancer survivors, with a focus on evidence-based clinical practices, associated research, and educational initiatives.

中文翻译：

---

提高综合癌症中心的生存率：整合西北医学中心和 Robert H. Lurie 综合癌症中心的临床护理、教育和研究计划

摘要

癌症幸存者数量空前且不断增长，需要全面的优质护理，包括癌症监测、症状管理和健康促进，以降低发病率和死亡率并提高生活质量。然而，协调和可持续的幸存者护理受到多个层面的障碍的挑战。我们概述了西北医学中心和罗伯特·H·卢里综合癌症中心二十年来不断发展的生存计划。我们目前的幸存者诊所包括针对儿童癌症成年幸存者的 STAR（幸存者采取行动和责任）；针对乳腺癌、结直肠癌、睾丸癌、淋巴瘤和白血病幸存者的成人特殊生存保险；和妇科肿瘤生存率。护理提供模型分别与一般模型、疾病/特定治疗模型和综合生存模型相一致。机构预算拨款支持了幸存者服务的报销。我们通过包含部分自动填充的电子健康记录 (EHR) 集成幸存者护理计划 (SCP) 模板，实现了幸存者教育、咨询和转介的标准化。我们开发了 EHR 集成数据收集工具（例如仪表板、SmartForm 和注册表），以促进数据分析、个性化患者转诊以及向癌症委员会 (CoC) 报告。我们向 CoC 报告 SCP 交付、营养师接触和 DEXA 扫描情况。在过去的十年中，我们的癌症幸存者研究所协调了临床医生、研究人员和教育工作者的努力。该研究所致力于为专业人士、幸存者和社区提供循证护理、高影响力研究和最先进的教育项目。未来的计划包括扩大临床服务和资助以治疗后癌症幸存者的独特需求为中心的应用研究。

对癌症幸存者的影响

西北医学中心和罗伯特·H·卢里综合癌症中心的生存项目强调了全面、协调和可持续的生存护理的必要性，以满足越来越多的癌症生存者的需求，重点是循证临床实践、相关研究和教育举措。