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Learning to provide humanistic care and support in the context of chronic illness: Insights from the narratives of healthcare professionals in hemato-oncology
European Journal of Oncology Nursing ( IF 2.8 ) Pub Date : 2024-02-01 , DOI: 10.1016/j.ejon.2024.102522
Karine Bilodeau , Cynthia Henriksen , Camila Aloisio Alves , Lynda Piché , Jacinthe Pepin , Virginia Lee , Marie-France Vachon , Nathalie Folch , Marie-Pascale Pomey , Nicolas Fernandez

To document the process by which healthcare professionals (HCPs) support people living with and beyond hematological cancer and detail how they learned from their personal and clinical experience. Using a narrative approach, we conducted nine semi-structured interviews with HCPs, including nurses, from a specialized care centre who support patients with hematological cancer. Interviews aimed to capture experiential learning gained from their practice. We performed a hybrid inductive/deductive content analysis on data using a framework based on sociological and educational models of experiential learning. Among healthcare professionals, analysis revealed the need to provide care and support that is ‘humane’ and adapted to each patient. Learning to provide this type of care proved to be challenging. Over the course of their clinical experience, healthcare professionals learned to adapt the support they provided by straddling a boundary between sympathy and empathy. Learning outcomes were associated with personal-professional development among participants. Our findings bring to light an overlooked facet of patient support in the context of cancer care, which is the acquisition of the soft skills required to deliver humanistic care and support. This learning process requires time and involves navigating between the realms of sympathy and empathy. Experiential learning is intertwined with the complexity of the often long-term patient-professional relationship that characterizes hemato-oncology. This unique relationship offers rewards for healthcare professionals on both personal and professional fronts.

中文翻译:

学习在慢性病背景下提供人文关怀和支持:来自血液肿瘤学医疗保健专业人员叙述的见解

记录医疗保健专业人员 (HCP) 为血液癌症患者和其他血液癌症患者提供支持的过程,并详细说明他们如何从个人和临床经验中学习。我们采用叙事方法,对来自专门护理中心为血液癌症患者提供支持的 HCP(包括护士)进行了 9 次半结构化访谈。访谈旨在捕捉从他们的实践中获得的经验学习。我们使用基于体验式学习的社会学和教育模型的框架对数据进行了混合归纳/演绎内容分析。在医疗保健专业人员中,分析表明需要提供“人道”且适合每位患者的护理和支持。事实证明,学习提供此类护理具有挑战性。在临床经验的过程中,医疗保健专业人员学会了通过跨越同情和同理心之间的界限来调整他们提供的支持。学习成果与参与者的个人职业发展相关。我们的研究结果揭示了癌症护理背景下患者支持中被忽视的一个方面,即获得提供人文护理和支持所需的软技能。这个学习过程需要时间,并且涉及在同情和同理心的领域之间进行导航。体验式学习与血液肿瘤学特征的长期患者-专业关系的复杂性交织在一起。这种独特的关系为医疗保健专业人员在个人和专业方面提供了回报。
更新日期:2024-02-01
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