To examine the role and value of specialist metastatic breast care nurses in Australia from the perspective of metastatic breast care nurses, patients, and family members. Metastatic breast cancer (mBC) is treatable yet incurable, with distinct supportive care needs, yet many of these needs are unmet. Diverse sampling methods were used to recruit 10 people with mBC, 5 family members and 10 metastatic breast care nurses. Semi-structured interviews were conducted online or by telephone during August–December 2020, and analysed thematically. The role of the specialist nurse was strongly valued within and across participant groups, with close alignment regarding what was highly valued. Three themes were identified. First, nurses played a vital role in giving voice and visibility to patients with mBC in a healthcare system in which they often felt invisible. Second, nurses combined their clinical and psychosocial skills with a sense of authentic engagement to create a safe space for those with mBC to discuss their feelings, experiences, and topics, especially those that were unlikely to be discussed in their other social and clinical interactions. Finally, nurses supported patients in living as well as possible while managing symptoms, ongoing treatment, and attendant psychosocial impacts of an incurable and life-limiting condition. This study underscores the central importance of metastatic breast care nurses in enhancing patient well-being, bridging gaps in care, and offering much-needed support. By addressing patients' emotional, clinical, and social needs, these specialist nurses contribute to a more holistic and compassionate approach to managing mBC.

中文翻译：

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让难以忍受的事情变成可以忍受的：对患者、家属和护士对转移性乳腺专科护理护士的作用和价值的看法进行定性检查

从转移性乳腺护理护士、患者和家庭成员的角度审视澳大利亚转移性乳腺专科护理护士的作用和价值。转移性乳腺癌 (mBC) 可以治疗但无法治愈，具有独特的支持性护理需求，但其中许多需求尚未得到满足。采用多种抽样方法招募了10名转移性乳腺癌患者、5名家庭成员和10名转移性乳腺护理护士。 2020 年 8 月至 12 月期间通过在线或电话进行半结构化访谈，并进行主题分析。专科护士的作用在参与者群体内部和群体之间都受到高度重视，并且在高度重视的方面密切一致。确定了三个主题。首先，在医疗保健系统中，护士在为转移性乳腺癌患者提供发言权和可见度方面发挥着至关重要的作用，而在医疗系统中，他们常常感到自己被忽视。其次，护士将他们的临床和社会心理技能与真实的参与感结合起来，为 mBC 患者创造一个安全的空间来讨论他们的感受、经历和话题，尤其是那些不太可能在其他社交和临床互动中讨论的话题。最后，护士在控制症状、持续治疗以及无法治愈和限制生命的疾病所带来的心理社会影响的同时，尽可能地支持患者生活。这项研究强调了转移性乳腺护理护士在提高患者福祉、弥合护理差距和提供急需的支持方面的核心重要性。通过满足患者的情感、临床和社会需求，这些专科护士为采用更全面、更富有同情心的方法来管理 mBC 做出了贡献。