Patient and Public Involvement and Engagement (PPIE) should be embedded as part of researchers’ everyday practice. However, this can be challenging. Creating a digital presence for PPIE as part of Higher Education Institutes’ (HEIs) infrastructure may be one way of supporting this. This can support how information is made available to patients and members of the public, but relatively little is known about how HEIs can best do this. Our aim was to develop a university website for patients and members of the public to learn about ways to get actively involved in research and be able to access the results of health and social care research. This project involved working as partners with five National Institute for Health and Care Research (NIHR) Research Champions. NIHR Research Champions are volunteers who raise awareness and share experiences about health and social care research. Content of a prototype Patient Public Community Research Hub website was co-produced with the Research Champions, and then 15 NIHR Research Champions from across England were asked for their views about the website. The information collected told us that the Patient Public Community Research Hub was viewed as being beneficial for increasing visibility of PPIE opportunities and sharing the findings of studies though needs further work: to make the information more user-friendly; to improve the methods for directing people to the site and to create new ways of connecting with people. It provides a foundation for further co-development and evaluation. A set of recommendations has been developed that may be of benefit to other HEIs and organisations who are committed to working with patients and members of the public. Sharing the results of health and care research studies with patients and members of the public could be improved. In many cases, patients and members of the public do not receive the results of studies they have taken part in. As well, it should also be easy for patients and members of the public to find out about opportunities to get involved with researchers in the development of their research. Universities have an important role to play in providing opportunities for patients and members of the public to be involved in the development of research studies, as well as sharing the findings of their studies. Creating an online patient public community research hub for this purpose was co-produced with National Institute for Health and Care Research (NIHR) Research Champions. The aims of this research were to find out what research volunteers within the National Institute for Health Research (NIHR), in the UK, would like to find on a university website about health and care research. This research aimed to understand how best to raise awareness about how people can get involved in research. It also aimed to understand how best to share information about research, with patients and members of the public, from a university website. Five NIHR Research Champions from diverse ethnic and cultural backgrounds (including younger and older people) helped to develop a set of webpages on a university website, called the Patient Public Community Research Hub. Once the initial online hub was created, online interviews were held with another 15 NIHR Research Champions. The interviews were to help the researcher to understand what they thought about the Patient Public Community Research Hub. The results from the interviews were analysed and grouped into themes. The themes helped to tell us what NIHR Research Champions felt patients and members of the public would want to see on the Patient Public Community Research Hub and what areas needed improving. A co-produced set of recommendations was created with the NIHR Research Champions who helped to shape the Patient Public Community Research Hub. The recommendations are for researchers, other organisations, or services to use. These recommendations along with the findings may help to improve how information gets shared about the results of research and ways in which patients and members of the public can get involved.

中文翻译：

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共同创建在线患者公共社区研究中心：一项探索英格兰国家健康研究所 (NIHR) 研究冠军观点的定性研究

患者和公众参与（PPIE）应成为研究人员日常实践的一部分。然而，这可能具有挑战性。作为高等教育机构 (HEI) 基础设施的一部分，为 PPIE 创建数字化存在可能是支持这一目标的一种方式。这可以支持如何向患者和公众提供信息，但人们对高等教育机构如何最好地做到这一点知之甚少。我们的目标是为患者和公众开发一个大学网站，以了解如何积极参与研究并能够获取健康和社会护理研究的结果。该项目涉及与五位国家健康与护理研究所 (NIHR) 研究冠军的合作伙伴。 NIHR 研究冠军是提高人们对健康和社会关怀研究的认识并分享经验的志愿者。原型患者公共社区研究中心网站的内容是与研究冠军共同制作的，然后来自英格兰各地的 15 名 NIHR 研究冠军被询问了他们对该网站的看法。收集到的信息告诉我们，患者公共社区研究中心被认为有利于提高 PPIE 机会的知名度并分享研究结果，但还需要进一步的工作：使信息更加用户友好；改进引导人们访问网站的方法并创造与人们联系的新方式。它为进一步的共同开发和评估提供了基础。已经制定了一系列建议，可能对致力于与患者和公众合作的其他高等教育机构和组织有益。与患者和公众分享健康和护理研究结果的工作还有待改进。在许多情况下，患者和公众不会收到他们参与的研究结果。同样，患者和公众也应该很容易找到参与研究人员的机会。他们的研究的发展。大学在为患者和公众提供参与研究发展以及分享研究结果的机会方面可以发挥重要作用。为此目的，与国家健康与护理研究所 (NIHR) 研究冠军共同创建了一个在线患者公共社区研究中心。这项研究的目的是了解英国国家健康研究所 (NIHR) 的研究志愿者希望在大学网站上找到哪些有关健康和护理研究的信息。这项研究旨在了解如何最好地提高人们对如何参与研究的认识。它还旨在了解如何最好地从大学网站与患者和公众分享研究信息。来自不同种族和文化背景（包括年轻人和老年人）的五位 NIHR 研究冠军帮助在大学网站上开发了一组网页，称为患者公共社区研究中心。最初的在线中心创建后，我们又对另外 15 名 NIHR 研究冠军进行了在线采访。这些访谈旨在帮助研究人员了解他们对患者公共社区研究中心的看法。对访谈结果进行分析并按主题分组。这些主题有助于告诉我们 NIHR 研究冠军认为患者和公众希望在患者公共社区研究中心看到什么以及哪些领域需要改进。与 NIHR 研究冠军共同制定了一套建议，他们帮助塑造了患者公共社区研究中心。这些建议供研究人员、其他组织或服务使用。这些建议以及研究结果可能有助于改善有关研究结果的信息共享方式以及患者和公众参与的方式。