Exploring caregivers' attitudes and beliefs about nutrition and weight management for young people with Duchenne muscular dystrophy,Muscle & Nerve

当前位置： X-MOL 学术 › Muscle Nerve › 论文详情

Our official English website, www.x-mol.net, welcomes your feedback! (Note: you will need to create a separate account there.)

Exploring caregivers' attitudes and beliefs about nutrition and weight management for young people with Duchenne muscular dystrophy
Muscle & Nerve ( IF 3.4 ) Pub Date : 2024-02-14 , DOI: 10.1002/mus.28062
Natassja Billich _{1,

2,

3} , Paula Bray _{4,

5} , Helen Truby _{3,

6} , Maureen Evans _{1,

7} , Monique M. Ryan _{1,

2,

8,

9} , Kate Carroll _{2,

8,

10} , Katy de Valle _{2,

8} , Daniella Villano _{2,

8} , Andrew Kornberg _{2,

8} , Bianca Sowerby ₂ , Michelle A. Farrar _{11,

12} , Manoj P. Menezes _{4,

5} , Sandra Holland ₁₁ , Rachel Lindeback ₁₁ , Anita Cairns ₁₃ , Zoe E. Davidson _{1,

2,

8}

Affiliation

Department of Nutrition, Dietetics and Food, School of Clinical Sciences at Monash Health, Faculty of Medicine Nursing and Health Sciences, Monash University Melbourne Australia
Department of Neurology The Royal Children's Hospital Melbourne Australia
School of Human Movement and Nutrition Sciences The University of Queensland Brisbane Australia
Children's Hospital, Westmead Clinical School, Faculty of Medicine and Health The University of Sydney Sydney Australia
Department of Neurology The Children's Hospital at Westmead Sydney Australia
School of Primary and Allied Health Care Faculty of Medicine Nursing and Health Sciences, Monash University Victoria Australia
Department of Metabolic Medicine The Royal Children's Hospital Melbourne Australia
Neurosciences Group Murdoch Children's Research Institute Melbourne Australia
Department of Paediatrics, Faculty of Medicine, Dentistry and Health Sciences Melbourne University Melbourne Australia
Department of Physiotherapy, School of Primary and Allied Health Care, Faculty of Medicine, Nursing and Health Sciences Monash University Victoria Australia
Department of Neurology Sydney Children's Hospital Sydney Australia
Discipline of Paediatrics and Child Health, School of Clinical Medicine UNSW Medicine and Health, UNSW Sydney Sydney Australia
Department of Neurology Queensland Children's Hospital Brisbane Australia

Obesity disproportionately affects children and adolescents with Duchenne muscular dystrophy (DMD) and with adverse consequences for disease progression. This study aims to: explore barriers, enablers, attitudes, and beliefs about nutrition and weight management; and to obtain caregiver preferences for the design of a weight management program for DMD.

中文翻译：