The aim of this study was to evaluate caregiver burden and factors associated with caregiver burden in caregivers of adults with epilepsy. This descriptive cross-sectional study was conducted with 107 patients with epilepsy and 107 their primary caregivers. Personal information form including sociodemographic data and Zarit Caregiver Burden Inventory (ZBI), were used for caregivers, and patient information form, Montreal Cognitive Assessment Scale (MoCA), Hospital Anxiety and Depression Scale (HADS), Epilepsy Quality of Life Scale (QoLIE-31) and Stigma Scale were used for patients. Caregiver burden was found to be related to gender (p = 0.047), marital status (p = 0.008), income (p = 0.003), education level (p = 0.05) age at onset of epilepsy (p = 0.025) and type of therapy (p = 0.005). The scale scores for cognitive functions (p < 0.001), stigma (p < 0.001), anxiety (p = 0.001), depression (p = 0.005), and quality of life (p < 0.001) of the patient showed significant correlations with caregiver burden. In addition, caregiver burden was found to correlate with some caregiver characteristics such as caregivers‘ age (p = 0.041), gender (p < 0.001), education (p < 0.001), income (p = 0.001) and relationship with the patient (p = 0.016). Time spent on caregiving per day was also positively correlated with caregiving burden (p < 0.001). In regression analysis, the gender of the caregiver, the gender of the patient, the stigma level of patient, and the type of treatment were found to be predictors of care burden (p < 0.05, R = 0.61). It was found that two-thirds of the families of patients with epilepsy experienced varying degrees of caregiver burden. In addition, it was determined that caregiver burden was associated with sociodemographic and numerous psychosocial factors of the patient as well as the caregiver. It is important that both the caregiver and the patient being cared for are closely evaluated in interventions to reduce the caregiver burden in patients with epilepsy.

中文翻译：

---

成人癫痫患者的照顾者负担及其预测因素

本研究的目的是评估成人癫痫患者的照顾者负担以及与照顾者负担相关的因素。这项描述性横断面研究针对 107 名癫痫患者及其 107 名主要照顾者进行。护理人员使用的个人信息表包括社会人口统计数据和 Zarit 护理人员负担量表 (ZBI)，患者信息表、蒙特利尔认知评估量表 (MoCA)、医院焦虑和抑郁量表 (HADS)、癫痫生活质量量表 (QoLIE- 31) 和耻辱量表用于患者。研究发现，照顾者负担与性别（p = 0.047）、婚姻状况（p = 0.008）、收入（p = 0.003）、教育水平（p = 0.05）、癫痫发作年龄（p = 0.025）和癫痫类型有关。治疗（p = 0.005）。患者的认知功能 (p < 0.001)、耻辱 (p < 0.001)、焦虑 (p = 0.001)、抑郁 (p = 0.005) 和生活质量 (p < 0.001) 的量表得分与护理人员显着相关负担。此外，还发现看护者的负担与一些看护者特征相关，例如看护者的年龄（p = 0.041）、性别（p < 0.001）、教育程度（p < 0.001）、收入（p = 0.001）以及与患者的关系（ p = 0.016）。每天花在护理上的时间也与护理负担呈正相关（p < 0.001）。在回归分析中，发现护理人员的性别、患者的性别、患者的耻辱程度和治疗类型是护理负担的预测因素（p < 0.05，R = 0.61）。研究发现，三分之二的癫痫患者家庭都经历着不同程度的照顾者负担。此外，还确定护理人员的负担与患者以及护理人员的社会人口统计学和众多心理社会因素有关。重要的是，在干预措施中对护理人员和被护理患者进行密切评估，以减轻癫痫患者的护理负担。