Parents of children/adolescents with cancer are placed in a state of severe suffering due to serious concerns, fears, and radical daily life changes. Human support is an important source of support for successful coping. This study explored fundamental aspects of parents' daily, social, and personal life during their child's treatment to deepen our understanding of ‘who’ plays a significant role in supporting parents, and how, and to what extent this support is provided. This qualitative study was undertaken in a compassion paradigm, designed and guided by Heidegger's and Gadamer's philosophy and compassionate methods. Data were generated through ethnographic observations (144 h), focus group interviews (n = 2), and individual/couple interviews (n = 16) at two Danish hospitals. Inductive content analysis was used to analyse data. Overall, support from peers, health professionals, and social networks constituted significant sources of support. Especially peers and health professionals had a continuous support role, which was fundamental for establishing interpersonal closeness and relieving suffering. Sharing responsibilities between parents and among social networks seemed to ease the emotional and practical burden. However, to ensure effectiveness, social networks must be available, outreach, and responsive to needs. Moreover, parents disclosed little self-awareness and resources and options for self-care due to a combination of lack of awareness, time, and space in the hospitals. Safeguarding interpersonal and interparental understanding and closeness in parental care is essential. One way is building resilience and a broader human-to-human-based safety net around the family, including social networks and professional psychosocial support, advantageously using compassion.

中文翻译：

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谁在孩子的癌症治疗期间支持父母？从同情心的角度进行定性研究

由于严重的担忧、恐惧和日常生活的彻底改变，患有癌症的儿童/青少年的父母处于严重痛苦的状态。人力支持是成功应对的重要支持来源。这项研究探讨了孩子治疗期间父母日常生活、社会和个人生活的基本方面，以加深我们对“谁”在支持父母方面发挥重要作用以及提供这种支持的方式和程度的理解。这项定性研究是在同情范式中进行的，由海德格尔和伽达默尔的哲学和同情方法设计和指导。数据是通过丹麦两家医院的人种学观察（144 小时）、焦点小组访谈（n = 2）和个人/夫妇访谈（n = 16）生成的。使用归纳内容分析来分析数据。总体而言，来自同行、卫生专业人员和社交网络的支持构成了重要的支持来源。特别是同伴和卫生专业人员发挥着持续的支持作用，这对于建立人际亲密关系和减轻痛苦至关重要。父母之间和社交网络之间分担责任似乎减轻了情感和实际负担。然而，为了确保有效性，社交网络必须可用、覆盖范围广并且能够响应需求。此外，由于医院缺乏意识、时间和空间，家长很少透露自我意识以及自我护理的资源和选择。在父母照顾中维护人际和父母间的理解和亲密关系至关重要。一种方法是在家庭周围建立复原力和更广泛的人与人的安全网，包括社交网络和专业的社会心理支持，并有利地利用同情心。